Parents’ attitudes toward clinical genetic testing for autism spectrum disorder: data from a Norwegian sample
Clinical genetic testing (CGT) of children with autism spectrum disorder (ASD) may have positive and negative effects. Knowledge about parents’ attitudes is needed to ensure good involvement of caregivers, which is crucial for accurate diagnosis and effective clinical management. This study aimed to...
Gespeichert in:
| Hauptverfasser: | , |
|---|---|
| Dokumenttyp: | Article (Journal) |
| Sprache: | Englisch |
| Veröffentlicht: |
18 May 2017
|
| In: |
International journal of molecular sciences
Year: 2017, Jahrgang: 18, Heft: 5 |
| ISSN: | 1422-0067 |
| DOI: | 10.3390/ijms18051078 |
| Online-Zugang: | Verlag, kostenfrei, Volltext: http://dx.doi.org/10.3390/ijms18051078 Verlag, kostenfrei, Volltext: http://www.mdpi.com/1422-0067/18/5/1078 
|
| Verfasserangaben: | Jarle Johannessen, Terje Nærland, Sigrun Hope, Tonje Torske, Anne Lise Høyland, Jana Strohmaier, Arvid Heiberg, Marcella Rietschel, Srdjan Djurovic and Ole A. Andreassen |
MARC
| LEADER | 00000caa a2200000 c 4500 | ||
|---|---|---|---|
| 001 | 1572605863 | ||
| 003 | DE-627 | ||
| 005 | 20220814131620.0 | ||
| 007 | cr uuu---uuuuu | ||
| 008 | 180503s2017 xx |||||o 00| ||eng c | ||
| 024 | 7 | |a 10.3390/ijms18051078 |2 doi | |
| 035 | |a (DE-627)1572605863 | ||
| 035 | |a (DE-576)502605863 | ||
| 035 | |a (DE-599)BSZ502605863 | ||
| 035 | |a (OCoLC)1341008230 | ||
| 040 | |a DE-627 |b ger |c DE-627 |e rda | ||
| 041 | |a eng | ||
| 084 | |a 33 |2 sdnb | ||
| 100 | 1 | |a Johannessen, Jarle |e VerfasserIn |0 (DE-588)1157046967 |0 (DE-627)1020049650 |0 (DE-576)502605677 |4 aut | |
| 245 | 1 | 0 | |a Parents’ attitudes toward clinical genetic testing for autism spectrum disorder |b data from a Norwegian sample |c Jarle Johannessen, Terje Nærland, Sigrun Hope, Tonje Torske, Anne Lise Høyland, Jana Strohmaier, Arvid Heiberg, Marcella Rietschel, Srdjan Djurovic and Ole A. Andreassen |
| 264 | 1 | |c 18 May 2017 | |
| 300 | |a 14 | ||
| 336 | |a Text |b txt |2 rdacontent | ||
| 337 | |a Computermedien |b c |2 rdamedia | ||
| 338 | |a Online-Ressource |b cr |2 rdacarrier | ||
| 500 | |a Gesehen am 03.05.2018 | ||
| 520 | |a Clinical genetic testing (CGT) of children with autism spectrum disorder (ASD) may have positive and negative effects. Knowledge about parents’ attitudes is needed to ensure good involvement of caregivers, which is crucial for accurate diagnosis and effective clinical management. This study aimed to assess parents’ attitudes toward CGT for ASD. Parent members of the Norwegian Autism Society were given a previously untested questionnaire and 1455 answered. Linear regression analyses were conducted to evaluate contribution of parent and child characteristics to attitude statements. Provided it could contribute to a casual explanation of their child’s ASD, 76% would undergo CGT. If it would improve the possibilities for early interventions, 74% were positive to CGT. Between 49–67% agreed that CGT could have a negative impact on health insurance, increase their concern for the child’s future and cause family conflicts. Parents against CGT (9%) were less optimistic regarding positive effects, but not more concerned with negative impacts. The severity of the children’s ASD diagnosis had a weak positive association with parent’s positive attitudes to CGT (p-values range from <0.001 to 0.975). Parents prefer that CGT is offered to those having a child with ASD (65%), when the child’s development deviates from normal (48%), or before pregnancy (36%). A majority of the parents of children with ASD are positive to CGT due to possibilities for an etiological explanation. | ||
| 650 | 4 | |a ASD | |
| 650 | 4 | |a Asperger syndrome | |
| 650 | 4 | |a attitudes | |
| 650 | 4 | |a autism | |
| 650 | 4 | |a clinical genetic testing | |
| 650 | 4 | |a ethics | |
| 650 | 4 | |a genetic counselling | |
| 650 | 4 | |a parents | |
| 700 | 1 | |a Rietschel, Marcella |d 1957- |e VerfasserIn |0 (DE-588)112785751 |0 (DE-627)505574020 |0 (DE-576)289742307 |4 aut | |
| 773 | 0 | 8 | |i Enthalten in |t International journal of molecular sciences |d Basel : Molecular Diversity Preservation International, 2000 |g 18(2017,5) Artikel-Nummer 1078, 14 Seiten |h Online-Ressource |w (DE-627)316340715 |w (DE-600)2019364-6 |w (DE-576)281194653 |x 1422-0067 |7 nnas |a Parents’ attitudes toward clinical genetic testing for autism spectrum disorder data from a Norwegian sample |
| 773 | 1 | 8 | |g volume:18 |g year:2017 |g number:5 |g extent:14 |a Parents’ attitudes toward clinical genetic testing for autism spectrum disorder data from a Norwegian sample |
| 856 | 4 | 0 | |u http://dx.doi.org/10.3390/ijms18051078 |x Verlag |x Resolving-System |z kostenfrei |3 Volltext |
| 856 | 4 | 0 | |u http://www.mdpi.com/1422-0067/18/5/1078 |x Verlag |z kostenfrei |3 Volltext |
| 951 | |a AR | ||
| 992 | |a 20180503 | ||
| 993 | |a Article | ||
| 994 | |a 2017 | ||
| 998 | |g 112785751 |a Rietschel, Marcella |m 112785751:Rietschel, Marcella |d 60000 |e 60000PR112785751 |k 0/60000/ |p 8 | ||
| 999 | |a KXP-PPN1572605863 |e 3007865220 | ||
| BIB | |a Y | ||
| SER | |a journal | ||
| JSO | |a {"name":{"displayForm":["Jarle Johannessen, Terje Nærland, Sigrun Hope, Tonje Torske, Anne Lise Høyland, Jana Strohmaier, Arvid Heiberg, Marcella Rietschel, Srdjan Djurovic and Ole A. Andreassen"]},"person":[{"family":"Johannessen","given":"Jarle","role":"aut","display":"Johannessen, Jarle"},{"family":"Rietschel","display":"Rietschel, Marcella","role":"aut","given":"Marcella"}],"recId":"1572605863","origin":[{"dateIssuedKey":"2017","dateIssuedDisp":"18 May 2017"}],"type":{"media":"Online-Ressource","bibl":"article-journal"},"id":{"doi":["10.3390/ijms18051078"],"eki":["1572605863"]},"physDesc":[{"extent":"14 S."}],"note":["Gesehen am 03.05.2018"],"relHost":[{"titleAlt":[{"title":"IJMS"}],"type":{"bibl":"periodical","media":"Online-Ressource"},"recId":"316340715","origin":[{"dateIssuedDisp":"2000-","publisher":"Molecular Diversity Preservation International","dateIssuedKey":"2000","publisherPlace":"Basel"}],"note":["Gesehen am 17.09.20"],"disp":"Parents’ attitudes toward clinical genetic testing for autism spectrum disorder data from a Norwegian sampleInternational journal of molecular sciences","physDesc":[{"extent":"Online-Ressource"}],"id":{"issn":["1422-0067","1661-6596"],"zdb":["2019364-6"],"eki":["316340715"]},"pubHistory":["1.2000 -"],"language":["eng"],"part":{"extent":"14","volume":"18","issue":"5","text":"18(2017,5) Artikel-Nummer 1078, 14 Seiten","year":"2017"},"title":[{"title_sort":"International journal of molecular sciences","title":"International journal of molecular sciences"}]}],"title":[{"subtitle":"data from a Norwegian sample","title":"Parents’ attitudes toward clinical genetic testing for autism spectrum disorder","title_sort":"Parents’ attitudes toward clinical genetic testing for autism spectrum disorder"}],"language":["eng"]} | ||
| SRT | |a JOHANNESSEPARENTSATT1820 | ||