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Rationale, design and objectives of ARegPKD, a European ARPKD registry study

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Autosomal recessive polycystic kidney disease (ARPKD) is a rare but frequently severe disorder that is typically characterized by cystic kidneys and congenital hepatic fibrosis but displays pronounced phenotypic heterogeneity. ARPKD is among the most important causes for pediatric end stage renal di...

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Main Authors: Ebner, Kathrin (Author) , Doyon, Anke (Author) , Sander, Anja (Author) , Weber, Lutz T. (Author) , Schaefer, Franz (Author)
Format: Article (Journal)
Language:English
Published: 18 February 2015
In: BMC nephrology
Year: 2015, Volume: 16
ISSN:1471-2369
DOI:10.1186/s12882-015-0002-z
Online Access:Verlag, lizenzpflichtig, Volltext: https://doi.org/10.1186/s12882-015-0002-z
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Author Notes:Kathrin Ebner, Markus Feldkoetter, Gema Ariceta, Carsten Bergmann, Reinhard Buettner, Anke Doyon, Ali Duzova, Heike Goebel, Dieter Haffner, Barbara Hero, Bernd Hoppe, Thomas Illig, Augustina Jankauskiene, Norman Klopp, Jens König, Mieczyslaw Litwin, Djalila Mekahli, Bruno Ranchin, Anja Sander, Sara Testa, Lutz Thorsten Weber, Dorota Wicher, Ayse Yuzbasioglu, Klaus Zerres, Jörg Dötsch, Franz Schaefer, Max Christoph Liebau
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Rationale, design and objectives of ARegPKD, a European ARPKD registry study by Ebner, Kathrin (Author) , Doyon, Anke (Author) , Sander, Anja (Author) , Weber, Lutz T. (Author) , Schaefer, Franz (Author) ,

BioMed Central 2015

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