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Caregivers' role in using a personal electronic health record: a qualitative study of cancer patients and caregivers in Germany

Particularly in the context of severe diseases like cancer, many patients wish to include caregivers in the planning of treatment and care. Many caregivers like to be involved but feel insufficiently enabled. This study aimed at providing insight into patients’ and caregivers’ perspectives on caregi...

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Main Authors: Weis, Aline (Author) , Pohlmann, Sabrina (Author) , Poß-Doering, Regina (Author) , Strauß, Beate (Author) , Ullrich, Charlotte (Author) , Hofmann, Helene (Author) , Ose, Dominik (Author) , Winkler, Eva C. (Author) , Szecsenyi, Joachim (Author) , Wensing, Michel (Author)
Format: Article (Journal)
Language:English
Published: 13 July 2020
In: BMC medical informatics and decision making
Year: 2020, Volume: 20, Pages: 1-12
ISSN:1472-6947
DOI:10.1186/s12911-020-01172-4
Online Access:Verlag, lizenzpflichtig, Volltext: https://doi.org/10.1186/s12911-020-01172-4
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Author Notes:Aline Weis, Sabrina Pohlmann, Regina Poss-Doering, Beate Strauss, Charlotte Ullrich, Helene Hofmann, Dominik Ose, Eva C. Winkler, Joachim Szecsenyi and Michel Wensing
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Summary:Particularly in the context of severe diseases like cancer, many patients wish to include caregivers in the planning of treatment and care. Many caregivers like to be involved but feel insufficiently enabled. This study aimed at providing insight into patients’ and caregivers’ perspectives on caregivers’ roles in managing the patient portal of an electronic personal health record (PHR).
Item Description:Gesehen am 19.10.2020
Physical Description:Online Resource
ISSN:1472-6947
DOI:10.1186/s12911-020-01172-4

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