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Patient’s thoughts and expectations about centres of expertise for PKU

In the Netherlands (NL) the government assigned 2 hospitals as centres of expertise (CE) for Phenylketonuria (PKU), while in the United Kingdom (UK) and Germany no centres are assigned specifically as PKU CE’s.

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Bibliographic Details
Main Authors: Wegberg, Anna van (Author) , MacDonald, A. (Author) , Abeln, D. (Author) , Hagedorn, T. S. (Author) , Lange, E. (Author) , Trefz, Friedrich K. (Author) , van Vliet, D. (Author) , Spronsen, F. J. van (Author)
Format: Article (Journal)
Language:English
Published: 06 January 2021
In: Orphanet journal of rare diseases
Year: 2021, Volume: 16
ISSN:1750-1172
DOI:10.1186/s13023-020-01647-7
Online Access:Verlag, lizenzpflichtig, Volltext: https://doi.org/10.1186/s13023-020-01647-7
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Author Notes:A.M.J. van Wegberg, A. MacDonald, D. Abeln, T.S. Hagedorn, E. Lange, F. Trefz, D. van Vliet and F.J. van Spronsen

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