Temporal trends of wild-type transthyretin amyloid cardiomyopathy in the transthyretin amyloidosis outcomes survey
Background - Transthyretin amyloid cardiomyopathy results from the accumulation of wild-type (ATTRwt) or variant (ATTRv) transthyretin amyloid fibrils in the myocardium. THAOS (Transthyretin Amyloidosis Outcomes Survey) is a global, longitudinal, observational survey of patients with ATTRv and ATTRw...
Gespeichert in:
| Hauptverfasser: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
|---|---|
| Dokumenttyp: | Article (Journal) |
| Sprache: | Englisch |
| Veröffentlicht: |
August 25, 2021
|
| In: |
JACC: CardioOncology
Year: 2021, Jahrgang: 3, Heft: 4, Pages: 537-546 |
| ISSN: | 2666-0873 |
| DOI: | 10.1016/j.jaccao.2021.08.009 |
| Online-Zugang: | Verlag, lizenzpflichtig, Volltext: https://doi.org/10.1016/j.jaccao.2021.08.009 Verlag, lizenzpflichtig, Volltext: https://www.sciencedirect.com/science/article/pii/S2666087321002052 
|
| Verfasserangaben: | Jose Nativi-Nicolau, MD, Alfonso Siu, MD, Angela Dispenzieri, MD, Mathew S. Maurer, MD, Claudio Rapezzi, MD, Arnt V. Kristen, MD, Pablo Garcia-Pavia, MD, Samantha LoRusso, MD, Márcia Waddington-Cruz, MD, PHD, Olivier Lairez, MD, PHD, Ronald Witteles, MD, Doug Chapman, MS, Leslie Amass, PHD, Martha Grogan, MD, on behalf of the THAOS Investigators |
MARC
| LEADER | 00000caa a2200000 c 4500 | ||
|---|---|---|---|
| 001 | 1789423678 | ||
| 003 | DE-627 | ||
| 005 | 20240415193327.0 | ||
| 007 | cr uuu---uuuuu | ||
| 008 | 220211s2021 xx |||||o 00| ||eng c | ||
| 024 | 7 | |a 10.1016/j.jaccao.2021.08.009 |2 doi | |
| 035 | |a (DE-627)1789423678 | ||
| 035 | |a (DE-599)KXP1789423678 | ||
| 035 | |a (OCoLC)1341441632 | ||
| 040 | |a DE-627 |b ger |c DE-627 |e rda | ||
| 041 | |a eng | ||
| 084 | |a 33 |2 sdnb | ||
| 100 | 1 | |a Nativi Nicolau, Jose N. |e VerfasserIn |0 (DE-588)1251567738 |0 (DE-627)1789421373 |4 aut | |
| 245 | 1 | 0 | |a Temporal trends of wild-type transthyretin amyloid cardiomyopathy in the transthyretin amyloidosis outcomes survey |c Jose Nativi-Nicolau, MD, Alfonso Siu, MD, Angela Dispenzieri, MD, Mathew S. Maurer, MD, Claudio Rapezzi, MD, Arnt V. Kristen, MD, Pablo Garcia-Pavia, MD, Samantha LoRusso, MD, Márcia Waddington-Cruz, MD, PHD, Olivier Lairez, MD, PHD, Ronald Witteles, MD, Doug Chapman, MS, Leslie Amass, PHD, Martha Grogan, MD, on behalf of the THAOS Investigators |
| 264 | 1 | |c August 25, 2021 | |
| 300 | |a 10 | ||
| 336 | |a Text |b txt |2 rdacontent | ||
| 337 | |a Computermedien |b c |2 rdamedia | ||
| 338 | |a Online-Ressource |b cr |2 rdacarrier | ||
| 500 | |a Gesehen am 11.02.2022 | ||
| 520 | |a Background - Transthyretin amyloid cardiomyopathy results from the accumulation of wild-type (ATTRwt) or variant (ATTRv) transthyretin amyloid fibrils in the myocardium. THAOS (Transthyretin Amyloidosis Outcomes Survey) is a global, longitudinal, observational survey of patients with ATTRv and ATTRwt amyloidosis and asymptomatic patients with transthyretin mutations. - Objectives - This study explored temporal trends in ATTRwt amyloidosis diagnoses using data from THAOS. - Methods - Using THAOS data from December 2007 to January 2020, the following comparisons were made according to year: ATTRwt amyloidosis diagnoses in the United States versus rest of the world, ATTRwt versus ATTRv amyloidosis with cardiac-associated mutations diagnoses, and ATTRwt amyloidosis diagnoses by tissue biopsy versus bone scintigraphy. - Results - There were 1,069 patients with ATTRwt amyloidosis and 525 with ATTRv amyloidosis with cardiac mutations enrolled in THAOS. The median time from symptom onset to ATTRwt amyloidosis diagnosis did not change over the past 5 years (>60 months from 2015-2019). ATTRwt amyloidosis diagnoses increased from 2 in 2005 to >100 per year from 2016, with a more pronounced increase in the United States compared with the rest of the world. Diagnoses of ATTRwt amyloidosis by tissue biopsy increased yearly and peaked in 2014 before declining, whereas diagnoses by bone scintigraphy increased markedly since 2011. ATTRv amyloidosis with cardiac mutation diagnoses increased from 3 in 2005 to 37 in 2011, then plateaued. The proportion of patients with ATTRwt amyloidosis diagnosed with New York Heart Association functional class III/IV heart failure decreased from 2012 (46.4%) to 2019 (16.0%). - Conclusions - In the past decade, ATTRwt amyloidosis diagnoses increased worldwide. Despite the growing utilization of bone scintigraphy, patients are diagnosed several years after symptom onset. (Transthyretin Amyloidosis Outcomes Survey [THAOS]; NCT00628745) | ||
| 650 | 4 | |a bone scintigraphy | |
| 650 | 4 | |a registry | |
| 650 | 4 | |a wild-type transthyretin amyloidosis | |
| 700 | 1 | |a Siu, Alfonso |e VerfasserIn |4 aut | |
| 700 | 1 | |a Dispenzieri, Angela |e VerfasserIn |4 aut | |
| 700 | 1 | |a Maurer, Mathew S. |e VerfasserIn |4 aut | |
| 700 | 1 | |a Rapezzi, Claudio |e VerfasserIn |4 aut | |
| 700 | 1 | |a Kristen, Arnt |d 1974- |e VerfasserIn |0 (DE-588)123480965 |0 (DE-627)706314530 |0 (DE-576)293726876 |4 aut | |
| 700 | 1 | |a Garcia-Pavia, Pablo |e VerfasserIn |4 aut | |
| 700 | 1 | |a LoRusso, Samantha |e VerfasserIn |4 aut | |
| 700 | 1 | |a Waddington-Cruz, Márcia |e VerfasserIn |4 aut | |
| 700 | 1 | |a Lairez, Olivier |e VerfasserIn |4 aut | |
| 700 | 1 | |a Witteles, Ronald |e VerfasserIn |4 aut | |
| 700 | 1 | |a Chapman, Doug |e VerfasserIn |4 aut | |
| 700 | 1 | |a Amass, Leslie |e VerfasserIn |4 aut | |
| 700 | 1 | |a Grogan, Martha |e VerfasserIn |4 aut | |
| 700 | 1 | |a Barroso, Fabio Adrian |e VerfasserIn |4 aut | |
| 700 | 1 | |a Van Cleemput, Johan |e VerfasserIn |4 aut | |
| 700 | 1 | |a Fine, Nowell |e VerfasserIn |4 aut | |
| 700 | 1 | |a Schmidt, Hartmut |e VerfasserIn |4 aut | |
| 700 | 1 | |a Gess, Burkhard |e VerfasserIn |4 aut | |
| 700 | 1 | |a Moelgaard, Henning |e VerfasserIn |4 aut | |
| 700 | 1 | |a Planté-Bordeneuve, Violaine |e VerfasserIn |4 aut | |
| 700 | 1 | |a Adams, David |e VerfasserIn |4 aut | |
| 700 | 1 | |a Inamo, Jocelyn |e VerfasserIn |4 aut | |
| 700 | 1 | |a Vita, Giuseppe |e VerfasserIn |4 aut | |
| 700 | 1 | |a Cirami, Calogero Lino |e VerfasserIn |4 aut | |
| 700 | 1 | |a Luigetti, Marco |e VerfasserIn |4 aut | |
| 700 | 1 | |a Emdin, Michele |e VerfasserIn |4 aut | |
| 700 | 1 | |a Sekijima, Yoshiki |e VerfasserIn |4 aut | |
| 700 | 1 | |a Yamashita, Taro |e VerfasserIn |4 aut | |
| 700 | 1 | |a Jeon, Eun-Seok |e VerfasserIn |4 aut | |
| 700 | 1 | |a Gonzalez Duarte Briseno, Maria Alejandra |e VerfasserIn |4 aut | |
| 700 | 1 | |a Nienhuis, Hans |e VerfasserIn |4 aut | |
| 700 | 1 | |a Azevedo, Olga |e VerfasserIn |4 aut | |
| 700 | 1 | |a Campistol Plana, Josep Maria |e VerfasserIn |4 aut | |
| 700 | 1 | |a Moreno, Juan Gonzalez |e VerfasserIn |4 aut | |
| 700 | 1 | |a Costello, Jose Gonzalez |e VerfasserIn |4 aut | |
| 700 | 1 | |a Wixner, Jonas |e VerfasserIn |4 aut | |
| 700 | 1 | |a Parman, Yesim |e VerfasserIn |4 aut | |
| 700 | 1 | |a Shah, Sanjiv |e VerfasserIn |4 aut | |
| 700 | 1 | |a Quan, Dianna |e VerfasserIn |4 aut | |
| 700 | 1 | |a Marburger, Tessa |e VerfasserIn |4 aut | |
| 700 | 1 | |a Polydefkis, Michael |e VerfasserIn |4 aut | |
| 700 | 1 | |a Gottlieb, Stephen |e VerfasserIn |4 aut | |
| 700 | 1 | |a Ralph, Jeffrey |e VerfasserIn |4 aut | |
| 700 | 1 | |a Sarswat, Nitasha |e VerfasserIn |4 aut | |
| 700 | 1 | |a Luo, Jin |e VerfasserIn |4 aut | |
| 700 | 1 | |a Murali, Srinivas |e VerfasserIn |4 aut | |
| 700 | 1 | |a Cotts, William |e VerfasserIn |4 aut | |
| 700 | 1 | |a Drachman, Brian |e VerfasserIn |4 aut | |
| 700 | 1 | |a Steidley, David |e VerfasserIn |4 aut | |
| 700 | 1 | |a Hummel, Scott |e VerfasserIn |4 aut | |
| 700 | 1 | |a Slosky, David |e VerfasserIn |4 aut | |
| 700 | 1 | |a Ventura, Hector |e VerfasserIn |4 aut | |
| 700 | 1 | |a Jacoby, Daniel |e VerfasserIn |4 aut | |
| 700 | 1 | |a Hoffman, James |e VerfasserIn |4 aut | |
| 700 | 1 | |a Tauras, James |e VerfasserIn |4 aut | |
| 700 | 1 | |a Zivkovic, Sasa |e VerfasserIn |4 aut | |
| 700 | 1 | |a Tallaj, Jose |e VerfasserIn |4 aut | |
| 700 | 1 | |a Lenihan, Daniel |e VerfasserIn |4 aut | |
| 700 | 1 | |a Mueller, Christopher |e VerfasserIn |4 aut | |
| 773 | 0 | 8 | |i Enthalten in |t JACC: CardioOncology |d [Amsterdam] : Elsevier, 2019 |g 3(2021), 4, Seite 537-546 |h Online-Ressource |w (DE-627)1734486414 |w (DE-600)3040527-0 |x 2666-0873 |7 nnas |a Temporal trends of wild-type transthyretin amyloid cardiomyopathy in the transthyretin amyloidosis outcomes survey |
| 773 | 1 | 8 | |g volume:3 |g year:2021 |g number:4 |g pages:537-546 |g extent:10 |a Temporal trends of wild-type transthyretin amyloid cardiomyopathy in the transthyretin amyloidosis outcomes survey |
| 856 | 4 | 0 | |u https://doi.org/10.1016/j.jaccao.2021.08.009 |x Verlag |x Resolving-System |z lizenzpflichtig |3 Volltext |
| 856 | 4 | 0 | |u https://www.sciencedirect.com/science/article/pii/S2666087321002052 |x Verlag |z lizenzpflichtig |3 Volltext |
| 951 | |a AR | ||
| 992 | |a 20220211 | ||
| 993 | |a Article | ||
| 994 | |a 2021 | ||
| 998 | |g 123480965 |a Kristen, Arnt |m 123480965:Kristen, Arnt |d 910000 |d 910100 |d 50000 |e 910000PK123480965 |e 910100PK123480965 |e 50000PK123480965 |k 0/910000/ |k 1/910000/910100/ |k 0/50000/ |p 6 | ||
| 999 | |a KXP-PPN1789423678 |e 4055976917 | ||
| BIB | |a Y | ||
| SER | |a journal | ||
| JSO | |a {"relHost":[{"title":[{"title":"JACC: CardioOncology","title_sort":"JACC: CardioOncology"}],"physDesc":[{"extent":"Online-Ressource"}],"origin":[{"dateIssuedKey":"2019","publisherPlace":"[Amsterdam]","publisher":"Elsevier","dateIssuedDisp":"2019-"}],"disp":"Temporal trends of wild-type transthyretin amyloid cardiomyopathy in the transthyretin amyloidosis outcomes surveyJACC: CardioOncology","language":["eng"],"part":{"text":"3(2021), 4, Seite 537-546","extent":"10","year":"2021","pages":"537-546","volume":"3","issue":"4"},"recId":"1734486414","note":["Gesehen am 23. September 2021"],"pubHistory":["Volume 1, issue 1 (September 2019)-"],"type":{"media":"Online-Ressource","bibl":"periodical"},"id":{"issn":["2666-0873"],"zdb":["3040527-0"],"eki":["1734486414"]},"corporate":[{"role":"isb","roleDisplay":"Herausgebendes Organ","display":"American College of Cardiology"}]}],"origin":[{"dateIssuedDisp":"August 25, 2021","dateIssuedKey":"2021"}],"name":{"displayForm":["Jose Nativi-Nicolau, MD, Alfonso Siu, MD, Angela Dispenzieri, MD, Mathew S. Maurer, MD, Claudio Rapezzi, MD, Arnt V. Kristen, MD, Pablo Garcia-Pavia, MD, Samantha LoRusso, MD, Márcia Waddington-Cruz, MD, PHD, Olivier Lairez, MD, PHD, Ronald Witteles, MD, Doug Chapman, MS, Leslie Amass, PHD, Martha Grogan, MD, on behalf of the THAOS Investigators"]},"id":{"eki":["1789423678"],"doi":["10.1016/j.jaccao.2021.08.009"]},"physDesc":[{"extent":"10 S."}],"language":["eng"],"person":[{"given":"Jose N.","role":"aut","roleDisplay":"VerfasserIn","display":"Nativi Nicolau, Jose N.","family":"Nativi Nicolau"},{"family":"Siu","display":"Siu, Alfonso","given":"Alfonso","roleDisplay":"VerfasserIn","role":"aut"},{"family":"Dispenzieri","display":"Dispenzieri, Angela","given":"Angela","role":"aut","roleDisplay":"VerfasserIn"},{"family":"Maurer","display":"Maurer, Mathew S.","given":"Mathew S.","roleDisplay":"VerfasserIn","role":"aut"},{"display":"Rapezzi, Claudio","given":"Claudio","role":"aut","roleDisplay":"VerfasserIn","family":"Rapezzi"},{"display":"Kristen, Arnt","given":"Arnt","roleDisplay":"VerfasserIn","role":"aut","family":"Kristen"},{"display":"Garcia-Pavia, Pablo","given":"Pablo","roleDisplay":"VerfasserIn","role":"aut","family":"Garcia-Pavia"},{"family":"LoRusso","given":"Samantha","role":"aut","roleDisplay":"VerfasserIn","display":"LoRusso, Samantha"},{"family":"Waddington-Cruz","display":"Waddington-Cruz, Márcia","role":"aut","roleDisplay":"VerfasserIn","given":"Márcia"},{"family":"Lairez","given":"Olivier","roleDisplay":"VerfasserIn","role":"aut","display":"Lairez, Olivier"},{"family":"Witteles","display":"Witteles, Ronald","role":"aut","roleDisplay":"VerfasserIn","given":"Ronald"},{"family":"Chapman","display":"Chapman, Doug","given":"Doug","roleDisplay":"VerfasserIn","role":"aut"},{"given":"Leslie","roleDisplay":"VerfasserIn","role":"aut","display":"Amass, Leslie","family":"Amass"},{"given":"Martha","roleDisplay":"VerfasserIn","role":"aut","display":"Grogan, Martha","family":"Grogan"},{"family":"Barroso","role":"aut","roleDisplay":"VerfasserIn","given":"Fabio Adrian","display":"Barroso, Fabio Adrian"},{"given":"Johan","role":"aut","roleDisplay":"VerfasserIn","display":"Van Cleemput, Johan","family":"Van Cleemput"},{"family":"Fine","given":"Nowell","role":"aut","roleDisplay":"VerfasserIn","display":"Fine, Nowell"},{"family":"Schmidt","display":"Schmidt, Hartmut","roleDisplay":"VerfasserIn","role":"aut","given":"Hartmut"},{"given":"Burkhard","role":"aut","roleDisplay":"VerfasserIn","display":"Gess, Burkhard","family":"Gess"},{"display":"Moelgaard, Henning","given":"Henning","roleDisplay":"VerfasserIn","role":"aut","family":"Moelgaard"},{"display":"Planté-Bordeneuve, Violaine","given":"Violaine","role":"aut","roleDisplay":"VerfasserIn","family":"Planté-Bordeneuve"},{"family":"Adams","display":"Adams, David","given":"David","roleDisplay":"VerfasserIn","role":"aut"},{"family":"Inamo","display":"Inamo, Jocelyn","role":"aut","roleDisplay":"VerfasserIn","given":"Jocelyn"},{"roleDisplay":"VerfasserIn","role":"aut","given":"Giuseppe","display":"Vita, Giuseppe","family":"Vita"},{"family":"Cirami","role":"aut","roleDisplay":"VerfasserIn","given":"Calogero Lino","display":"Cirami, Calogero Lino"},{"roleDisplay":"VerfasserIn","role":"aut","given":"Marco","display":"Luigetti, Marco","family":"Luigetti"},{"given":"Michele","roleDisplay":"VerfasserIn","role":"aut","display":"Emdin, Michele","family":"Emdin"},{"display":"Sekijima, Yoshiki","role":"aut","roleDisplay":"VerfasserIn","given":"Yoshiki","family":"Sekijima"},{"family":"Yamashita","display":"Yamashita, Taro","role":"aut","roleDisplay":"VerfasserIn","given":"Taro"},{"roleDisplay":"VerfasserIn","role":"aut","given":"Eun-Seok","display":"Jeon, Eun-Seok","family":"Jeon"},{"display":"Gonzalez Duarte Briseno, Maria Alejandra","roleDisplay":"VerfasserIn","role":"aut","given":"Maria Alejandra","family":"Gonzalez Duarte Briseno"},{"family":"Nienhuis","display":"Nienhuis, Hans","given":"Hans","role":"aut","roleDisplay":"VerfasserIn"},{"given":"Olga","role":"aut","roleDisplay":"VerfasserIn","display":"Azevedo, Olga","family":"Azevedo"},{"family":"Campistol Plana","given":"Josep Maria","roleDisplay":"VerfasserIn","role":"aut","display":"Campistol Plana, Josep Maria"},{"family":"Moreno","display":"Moreno, Juan Gonzalez","roleDisplay":"VerfasserIn","role":"aut","given":"Juan Gonzalez"},{"given":"Jose Gonzalez","roleDisplay":"VerfasserIn","role":"aut","display":"Costello, Jose Gonzalez","family":"Costello"},{"family":"Wixner","display":"Wixner, Jonas","roleDisplay":"VerfasserIn","role":"aut","given":"Jonas"},{"given":"Yesim","role":"aut","roleDisplay":"VerfasserIn","display":"Parman, Yesim","family":"Parman"},{"given":"Sanjiv","role":"aut","roleDisplay":"VerfasserIn","display":"Shah, Sanjiv","family":"Shah"},{"display":"Quan, Dianna","roleDisplay":"VerfasserIn","role":"aut","given":"Dianna","family":"Quan"},{"family":"Marburger","roleDisplay":"VerfasserIn","role":"aut","given":"Tessa","display":"Marburger, Tessa"},{"given":"Michael","roleDisplay":"VerfasserIn","role":"aut","display":"Polydefkis, Michael","family":"Polydefkis"},{"display":"Gottlieb, Stephen","roleDisplay":"VerfasserIn","role":"aut","given":"Stephen","family":"Gottlieb"},{"family":"Ralph","display":"Ralph, Jeffrey","given":"Jeffrey","role":"aut","roleDisplay":"VerfasserIn"},{"family":"Sarswat","display":"Sarswat, Nitasha","role":"aut","roleDisplay":"VerfasserIn","given":"Nitasha"},{"given":"Jin","roleDisplay":"VerfasserIn","role":"aut","display":"Luo, Jin","family":"Luo"},{"roleDisplay":"VerfasserIn","role":"aut","given":"Srinivas","display":"Murali, Srinivas","family":"Murali"},{"family":"Cotts","role":"aut","roleDisplay":"VerfasserIn","given":"William","display":"Cotts, William"},{"family":"Drachman","given":"Brian","role":"aut","roleDisplay":"VerfasserIn","display":"Drachman, Brian"},{"given":"David","role":"aut","roleDisplay":"VerfasserIn","display":"Steidley, David","family":"Steidley"},{"family":"Hummel","roleDisplay":"VerfasserIn","role":"aut","given":"Scott","display":"Hummel, Scott"},{"display":"Slosky, David","role":"aut","roleDisplay":"VerfasserIn","given":"David","family":"Slosky"},{"family":"Ventura","display":"Ventura, Hector","role":"aut","roleDisplay":"VerfasserIn","given":"Hector"},{"family":"Jacoby","display":"Jacoby, Daniel","given":"Daniel","role":"aut","roleDisplay":"VerfasserIn"},{"display":"Hoffman, James","roleDisplay":"VerfasserIn","role":"aut","given":"James","family":"Hoffman"},{"family":"Tauras","role":"aut","roleDisplay":"VerfasserIn","given":"James","display":"Tauras, James"},{"family":"Zivkovic","display":"Zivkovic, Sasa","given":"Sasa","role":"aut","roleDisplay":"VerfasserIn"},{"family":"Tallaj","display":"Tallaj, Jose","given":"Jose","roleDisplay":"VerfasserIn","role":"aut"},{"family":"Lenihan","roleDisplay":"VerfasserIn","role":"aut","given":"Daniel","display":"Lenihan, Daniel"},{"family":"Mueller","roleDisplay":"VerfasserIn","role":"aut","given":"Christopher","display":"Mueller, Christopher"}],"title":[{"title_sort":"Temporal trends of wild-type transthyretin amyloid cardiomyopathy in the transthyretin amyloidosis outcomes survey","title":"Temporal trends of wild-type transthyretin amyloid cardiomyopathy in the transthyretin amyloidosis outcomes survey"}],"type":{"media":"Online-Ressource","bibl":"article-journal"},"recId":"1789423678","note":["Gesehen am 11.02.2022"]} | ||
| SRT | |a NATIVINICOTEMPORALTR2520 | ||