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The management of asymptomatic congenital pulmonary airway malformation: results of a European Delphi survey

Consensus on the optimal management of asymptomatic congenital pulmonary airway malformation (CPAM) is lacking, and comparison between studies remains difficult due to a large variety in outcome measures. We aimed to define a core outcome set (COS) for pediatric patients with an asymptomatic CPAM. A...

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Hauptverfasser: Kersten, Casper M. (VerfasserIn) , Hermelijn, Sergei M. (VerfasserIn) , Mullassery, Dhanya (VerfasserIn) , Muthialu, Nagarajan (VerfasserIn) , Cobanoglu, Nazan (VerfasserIn) , Gartner, Silvia (VerfasserIn) , Bagolan, Pietro (VerfasserIn) , Mesas Burgos, Carmen (VerfasserIn) , Sgrò, Alberto (VerfasserIn) , Heyman, Stijn (VerfasserIn) , Till, Holger (VerfasserIn) , Suominen, Janne (VerfasserIn) , Schurink, Maarten (VerfasserIn) , Desender, Liesbeth (VerfasserIn) , Losty, Paul (VerfasserIn) , Steyaert, Henri (VerfasserIn) , Terheggen-Lagro, Suzanne (VerfasserIn) , Metzelder, Martin (VerfasserIn) , Bonnard, Arnaud (VerfasserIn) , Sfeir, Rony (VerfasserIn) , Singh, Michael (VerfasserIn) , Yardley, Iain (VerfasserIn) , Rikkers-Mutsaerts, Noor R. V. M. (VerfasserIn) , van der Ent, Cornelis K. (VerfasserIn) , Qvist, Niels (VerfasserIn) , Cox, Des W. (VerfasserIn) , Peters, Robert (VerfasserIn) , Bannier, Michiel A. G. E. (VerfasserIn) , Wessel, Lucas (VerfasserIn) , Proesmans, Marijke (VerfasserIn) , Stanton, Michael (VerfasserIn) , Hannon, Edward (VerfasserIn) , Zampoli, Marco (VerfasserIn) , Morini, Francesco (VerfasserIn) , Tiddens, Harm A. W. M. (VerfasserIn) , Wijnen, René M. H. (VerfasserIn) , Schnater, Johannes M. (VerfasserIn)
Dokumenttyp: Article (Journal)
Sprache:Englisch
Veröffentlicht: 30 July 2022
In: Children
Year: 2022, Jahrgang: 9, Heft: 8, Pages: 1-14
ISSN:2227-9067
DOI:10.3390/children9081153
Online-Zugang:Verlag, kostenfrei, Volltext: https://doi.org/10.3390/children9081153
Verlag, kostenfrei, Volltext: https://www.mdpi.com/2227-9067/9/8/1153
Volltext
Verfasserangaben:Casper M. Kersten, Sergei M. Hermelijn, Dhanya Mullassery, Nagarajan Muthialu, Nazan Cobanoglu, Silvia Gartner, Pietro Bagolan, Carmen Mesas Burgos, Alberto Sgrò, Stijn Heyman, Holger Till, Janne Suominen, Maarten Schurink, Liesbeth Desender, Paul Losty, Henri Steyaert, Suzanne Terheggen-Lagro, Martin Metzelder, Arnaud Bonnard, Rony Sfeir, Michael Singh, Iain Yardley, Noor R.V.M. Rikkers-Mutsaerts, Cornelis K. van der Ent, Niels Qvist, Des W. Cox, Robert Peters, Michiel A.G.E. Bannier, Lucas Wessel, Marijke Proesmans, Michael Stanton, Edward Hannon, Marco Zampoli, Francesco Morini, Harm A.W.M. Tiddens, René M.H. Wijnen and Johannes M. Schnater
Beschreibung
Zusammenfassung:Consensus on the optimal management of asymptomatic congenital pulmonary airway malformation (CPAM) is lacking, and comparison between studies remains difficult due to a large variety in outcome measures. We aimed to define a core outcome set (COS) for pediatric patients with an asymptomatic CPAM. An online, three-round Delphi survey was conducted in two stakeholder groups of specialized caregivers (surgeons and non-surgeons) in various European centers. Proposed outcome parameters were scored according to level of importance, and the final COS was established through consensus. A total of 55 participants (33 surgeons, 22 non-surgeons) from 28 centers in 13 European countries completed the three rounds and rated 43 outcome parameters. The final COS comprises seven outcome parameters: respiratory insufficiency, surgical complications, mass effect/mediastinal shift (at three time-points) and multifocal disease (at two time-points). The seven outcome parameters included in the final COS reflect the diversity in priorities among this large group of European participants. However, we recommend the incorporation of these outcome parameters in the design of future studies, as they describe measurable and validated outcomes as well as the accepted age at measurement.
Beschreibung:Gesehen am 23.10.2023
Beschreibung:Online Resource
ISSN:2227-9067
DOI:10.3390/children9081153

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