Assessing the extent of shared decision making in pediatrics: preliminary psychometric evaluation of the German CollaboRATEpediatric scales for patients aged 7-18 years, parents and parent-proxy reports

Objective - To conduct a preliminary evaluation of psychometric properties of CollaboRATEpediatric, a set of three scales to assess shared decision making (SDM) with pediatric patients, parents and parents on behalf of their children (parent-proxy reports). As secondary objectives we examined the sc...

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Hauptverfasser: Herrle, Angélique (VerfasserIn) , Hoffmann, Dorle U. (VerfasserIn) , Görig, Tatiana (VerfasserIn) , Georg, Sabine (VerfasserIn) , König, Jochem (VerfasserIn) , Urschitz, Michael Siegfried (VerfasserIn) , Bock, Freia de (VerfasserIn) , Eichinger, Michael (VerfasserIn)
Dokumenttyp: Article (Journal)
Sprache:Englisch
Veröffentlicht: June 2022
In: Patient education and counseling
Year: 2022, Jahrgang: 105, Heft: 6, Pages: 1642-1651
ISSN:1873-5134
DOI:10.1016/j.pec.2021.10.029
Online-Zugang:Verlag, lizenzpflichtig, Volltext: https://doi.org/10.1016/j.pec.2021.10.029
Verlag, lizenzpflichtig, Volltext: https://www.sciencedirect.com/science/article/pii/S0738399121006881
Volltext
Verfasserangaben:Angélique Herrler, Dorle U. Hoffmann, Tatiana Görig, Sabine Georg, Jochem König, Michael S. Urschitz, Freia De Bock, Michael Eichinger

MARC

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520 |a Objective - To conduct a preliminary evaluation of psychometric properties of CollaboRATEpediatric, a set of three scales to assess shared decision making (SDM) with pediatric patients, parents and parents on behalf of their children (parent-proxy reports). As secondary objectives we examined the scales’ distributional characteristics, acceptability, and agreement between scales. - Methods - Patients aged ≥ 7 years and parents were recruited in two outpatient facilities providing healthcare services for children with neurological and behavioral health conditions. We collected 46, 169 and 227 pediatric patient, parent-proxy and parent reports, respectively. Convergent, divergent and discriminative validity were investigated. Acceptability of the scales and agreement between patient and parent-proxy reports were explored by assessing item nonresponse and Bland-Altman plots. - Results - While convergent and divergent validity were established for the parent scale, discriminative validity was not demonstrated for any of the scales. The scales showed good to excellent acceptability. Parent-proxy reports agreed to a moderate extent with patients’ self-reports of SDM. - Conclusion - CollaboRATEpediatric offers a starting point for parsimoniously assessing SDM in Pediatrics, however further psychometric testing is warranted. - Practice Implications - Given limited psychometric support for the pediatric patient scale, we recommend using both the pediatric patient and parent-proxy report scales to assess SDM in pediatric patients until further psychometric testing is concluded. 
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