Integration of patient-reported outcome data collected via web applications and mobile apps into a nation-wide COVID-19 research platform using fast healthcare interoperability resources: development study
Background: The Network University Medicine projects are an important part of the German COVID-19 research infrastructure. They comprise 2 subprojects: COVID-19 Data Exchange (CODEX) and Coordination on Mobile Pandemic Apps Best Practice and Solution Sharing (COMPASS). CODEX provides a centralized a...
Gespeichert in:
| Hauptverfasser: | , , , , , |
|---|---|
| Dokumenttyp: | Article (Journal) |
| Sprache: | Englisch |
| Veröffentlicht: |
27.2.2024
|
| In: |
Journal of medical internet research
Year: 2024, Jahrgang: 26, Heft: 1, Pages: 1-16 |
| ISSN: | 1438-8871 |
| DOI: | 10.2196/47846 |
| Online-Zugang: | Verlag, lizenzpflichtig, Volltext: https://doi.org/10.2196/47846 Verlag, lizenzpflichtig, Volltext: https://www.jmir.org/2024/1/e47846 
|
| Verfasserangaben: | Johannes Benedict Oehm, MSc; Sarah Luise Riepenhausen; Michael Storck, PhD; Martin Dugas, MD, MSc; Rüdiger Pryss, PhD; Julian Varghese, MD, MSc |
MARC
| LEADER | 00000caa a2200000 c 4500 | ||
|---|---|---|---|
| 001 | 189539984X | ||
| 003 | DE-627 | ||
| 005 | 20241205151659.0 | ||
| 007 | cr uuu---uuuuu | ||
| 008 | 240715s2024 xx |||||o 00| ||eng c | ||
| 024 | 7 | |a 10.2196/47846 |2 doi | |
| 035 | |a (DE-627)189539984X | ||
| 035 | |a (DE-599)KXP189539984X | ||
| 035 | |a (OCoLC)1475302654 | ||
| 040 | |a DE-627 |b ger |c DE-627 |e rda | ||
| 041 | |a eng | ||
| 084 | |a 33 |2 sdnb | ||
| 100 | 1 | |a Oehm, Johannes Benedict |e VerfasserIn |0 (DE-588)1335734708 |0 (DE-627)1895400767 |4 aut | |
| 245 | 1 | 0 | |a Integration of patient-reported outcome data collected via web applications and mobile apps into a nation-wide COVID-19 research platform using fast healthcare interoperability resources |b development study |c Johannes Benedict Oehm, MSc; Sarah Luise Riepenhausen; Michael Storck, PhD; Martin Dugas, MD, MSc; Rüdiger Pryss, PhD; Julian Varghese, MD, MSc |
| 264 | 1 | |c 27.2.2024 | |
| 300 | |b Illustrationen | ||
| 300 | |a 16 | ||
| 336 | |a Text |b txt |2 rdacontent | ||
| 337 | |a Computermedien |b c |2 rdamedia | ||
| 338 | |a Online-Ressource |b cr |2 rdacarrier | ||
| 500 | |a Gesehen am 15.07.2024 | ||
| 520 | |a Background: The Network University Medicine projects are an important part of the German COVID-19 research infrastructure. They comprise 2 subprojects: COVID-19 Data Exchange (CODEX) and Coordination on Mobile Pandemic Apps Best Practice and Solution Sharing (COMPASS). CODEX provides a centralized and secure data storage platform for research data, whereas in COMPASS, expert panels were gathered to develop a reference app framework for capturing patient-reported outcomes (PROs) that can be used by any researcher. - Objective: Our study aims to integrate the data collected with the COMPASS reference app framework into the central CODEX platform, so that they can be used by secondary researchers. Although both projects used the Fast Healthcare Interoperability Resources (FHIR) standard, it was not used in a way that data could be shared directly. Given the short time frame and the parallel developments within the CODEX platform, a pragmatic and robust solution for an interface component was required. - Methods: We have developed a means to facilitate and promote the use of the German Corona Consensus (GECCO) data set, a core data set for COVID-19 research in Germany. In this way, we ensured semantic interoperability for the app-collected PRO data with the COMPASS app. We also developed an interface component to sustain syntactic interoperability. - Results: The use of different FHIR types by the COMPASS reference app framework (the general-purpose FHIR Questionnaire) and the CODEX platform (eg, Patient, Condition, and Observation) was found to be the most significant obstacle. Therefore, we developed an interface component that realigns the Questionnaire items with the corresponding items in the GECCO data set and provides the correct resources for the CODEX platform. We extended the existing COMPASS questionnaire editor with an import function for GECCO items, which also tags them for the interface component. This ensures syntactic interoperability and eases the reuse of the GECCO data set for researchers. - Conclusions: This paper shows how PRO data, which are collected across various studies conducted by different researchers, can be captured in a research-compatible way. This means that the data can be shared with a central research infrastructure and be reused by other researchers to gain more insights about COVID-19 and its sequelae. - Trial Registration: | ||
| 700 | 1 | |a Riepenhausen, Sarah Luise |e VerfasserIn |4 aut | |
| 700 | 1 | |a Storck, Michael |e VerfasserIn |4 aut | |
| 700 | 1 | |a Dugas, Martin |e VerfasserIn |0 (DE-588)1131361393 |0 (DE-627)886028701 |0 (DE-576)487948939 |4 aut | |
| 700 | 1 | |a Pryss, Rüdiger |e VerfasserIn |4 aut | |
| 700 | 1 | |a Varghese, Julian |e VerfasserIn |4 aut | |
| 773 | 0 | 8 | |i Enthalten in |t Journal of medical internet research |d Richmond, Va. : Healthcare World, 1999 |g 26(2024), 1, Artikel-ID e47846, Seite 1-16 |h Online-Ressource |w (DE-627)324614136 |w (DE-600)2028830-X |w (DE-576)281198233 |x 1438-8871 |7 nnas |a Integration of patient-reported outcome data collected via web applications and mobile apps into a nation-wide COVID-19 research platform using fast healthcare interoperability resources development study |
| 773 | 1 | 8 | |g volume:26 |g year:2024 |g number:1 |g elocationid:e47846 |g pages:1-16 |g extent:16 |a Integration of patient-reported outcome data collected via web applications and mobile apps into a nation-wide COVID-19 research platform using fast healthcare interoperability resources development study |
| 856 | 4 | 0 | |u https://doi.org/10.2196/47846 |x Verlag |x Resolving-System |z lizenzpflichtig |3 Volltext |
| 856 | 4 | 0 | |u https://www.jmir.org/2024/1/e47846 |x Verlag |z lizenzpflichtig |3 Volltext |
| 951 | |a AR | ||
| 992 | |a 20240715 | ||
| 993 | |a Article | ||
| 994 | |a 2024 | ||
| 998 | |g 1131361393 |a Dugas, Martin |m 1131361393:Dugas, Martin |d 910000 |d 911810 |e 910000PD1131361393 |e 911810PD1131361393 |k 0/910000/ |k 1/910000/911810/ |p 4 | ||
| 999 | |a KXP-PPN189539984X |e 4551053104 | ||
| BIB | |a Y | ||
| SER | |a journal | ||
| JSO | |a {"note":["Gesehen am 15.07.2024"],"title":[{"title":"Integration of patient-reported outcome data collected via web applications and mobile apps into a nation-wide COVID-19 research platform using fast healthcare interoperability resources","title_sort":"Integration of patient-reported outcome data collected via web applications and mobile apps into a nation-wide COVID-19 research platform using fast healthcare interoperability resources","subtitle":"development study"}],"language":["eng"],"relHost":[{"disp":"Integration of patient-reported outcome data collected via web applications and mobile apps into a nation-wide COVID-19 research platform using fast healthcare interoperability resources development studyJournal of medical internet research","origin":[{"dateIssuedDisp":"1999-","publisher":"Healthcare World","dateIssuedKey":"1999","publisherPlace":"Richmond, Va."}],"titleAlt":[{"title":"JMIR"}],"part":{"issue":"1","text":"26(2024), 1, Artikel-ID e47846, Seite 1-16","volume":"26","pages":"1-16","extent":"16","year":"2024"},"type":{"bibl":"periodical","media":"Online-Ressource"},"pubHistory":["1.1999 -"],"recId":"324614136","physDesc":[{"extent":"Online-Ressource"}],"language":["eng"],"title":[{"title":"Journal of medical internet research","title_sort":"Journal of medical internet research","subtitle":"international scientific journal for medical research, information and communication on the internet ; JMIR"}],"id":{"issn":["1438-8871"],"zdb":["2028830-X"],"eki":["324614136"]}}],"recId":"189539984X","person":[{"given":"Johannes Benedict","role":"aut","family":"Oehm","display":"Oehm, Johannes Benedict"},{"family":"Riepenhausen","display":"Riepenhausen, Sarah Luise","given":"Sarah Luise","role":"aut"},{"role":"aut","given":"Michael","display":"Storck, Michael","family":"Storck"},{"family":"Dugas","display":"Dugas, Martin","given":"Martin","role":"aut"},{"given":"Rüdiger","role":"aut","family":"Pryss","display":"Pryss, Rüdiger"},{"display":"Varghese, Julian","family":"Varghese","role":"aut","given":"Julian"}],"id":{"doi":["10.2196/47846"],"eki":["189539984X"]},"name":{"displayForm":["Johannes Benedict Oehm, MSc; Sarah Luise Riepenhausen; Michael Storck, PhD; Martin Dugas, MD, MSc; Rüdiger Pryss, PhD; Julian Varghese, MD, MSc"]},"type":{"media":"Online-Ressource","bibl":"article-journal"},"physDesc":[{"noteIll":"Illustrationen","extent":"16 S."}],"origin":[{"dateIssuedDisp":"27.2.2024","dateIssuedKey":"2024"}]} | ||
| SRT | |a OEHMJOHANNINTEGRATIO2722 | ||