Quality measurement for soft tissue sarcomas in Germany: first results of the certified sarcoma centres: research article
Introduction: Soft tissue sarcomas (STSs) are rare diseases. A high level of standardization and centralization was lacking in Germany until 2018. Methods: By developing an evidence-based guideline and a certification system for sarcoma centres, foundations for structured, guideline-based, and centr...
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| Main Authors: | , , , , , , , , |
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| Format: | Article (Journal) |
| Language: | English |
| Published: |
June 2023
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| In: |
Oncology research and treatment
Year: 2023, Volume: 46, Issue: 6, Pages: 236-245 |
| ISSN: | 2296-5262 |
| DOI: | 10.1159/000530425 |
| Online Access: | Verlag, lizenzpflichtig, Volltext: https://doi.org/10.1159/000530425 Verlag, lizenzpflichtig, Volltext: https://karger.com/ort/article/46/6/236/836711/Quality-Measurement-for-Soft-Tissue-Sarcomas-in 
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| Author Notes: | Johannes Rückher, Ellen Grießhammer, Thomas Langer, Gregor Wenzel, Martin Utzig, Peter Hohenberger, Lars H. Lindner, Jens Jakob, Simone Wesselmann |
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| 520 | |a Introduction: Soft tissue sarcomas (STSs) are rare diseases. A high level of standardization and centralization was lacking in Germany until 2018. Methods: By developing an evidence-based guideline and a certification system for sarcoma centres, foundations for structured, guideline-based, and centralized sarcoma care were defined. First results of the certified sarcoma centres are presented. Results: The first 3 years of data collection show good results for case volume, presentation rates in pretherapeutic and postoperative tumour boards, psycho-oncological counselling, and study rates. However, other indicators (e.g., preoperative or postoperative radiotherapy for operated high-risk STS without GIST, counselling rates social services) still have potential for improvement. Based on these results, the set of indicators could be further improved. Conclusions: A sarcoma-specific quality assurance scheme that includes guideline-derived quality indicators was developed. In future, a broader database will allow further insights into sarcoma care in Germany. | ||
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