Correlates of perceived shared decision making with parents of children with special healthcare needs: Findings from the PART-CHILD study

Objective - To assess the extent of perceived shared decision making (SDM) with parents of pediatric patients and to examine its association with characteristics of patients, professionals, and healthcare facilities. - Methods - Parents of pediatric patients (n = 4383) were recruited in 15 social pe...

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Hauptverfasser: Görig, Tatiana (VerfasserIn) , Eichinger, Michael (VerfasserIn) , Georg, Sabine (VerfasserIn) , Hoffmann, Dorle (VerfasserIn) , Philippi, Heike (VerfasserIn) , König, Jochem (VerfasserIn) , Urschitz, Michael Siegfried (VerfasserIn) , Bock, Freia de (VerfasserIn)
Dokumenttyp: Article (Journal)
Sprache:Englisch
Veröffentlicht: July 2024
In: Patient education and counseling
Year: 2024, Jahrgang: 124, Pages: 1-8
ISSN:1873-5134
DOI:10.1016/j.pec.2024.108252
Online-Zugang:Verlag, lizenzpflichtig, Volltext: https://doi.org/10.1016/j.pec.2024.108252
Verlag, lizenzpflichtig, Volltext: https://www.sciencedirect.com/science/article/pii/S0738399124001198
Volltext
Verfasserangaben:Tatiana Görig, Michael Eichinger, Sabine Georg, Dorle Hoffmann, Heike Philippi, Jochem König, Michael S. Urschitz, Freia De Bock

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520 |a Objective - To assess the extent of perceived shared decision making (SDM) with parents of pediatric patients and to examine its association with characteristics of patients, professionals, and healthcare facilities. - Methods - Parents of pediatric patients (n = 4383) were recruited in 15 social pediatric centers in Germany and provided information on perceived SDM (binary CollaboRATEpediatric score: optimal versus suboptimal extent of SDM), child age and sex, type of impairment, appointment, and healthcare professional present at the appointment. Organizational characteristics were assessed in a cross-sectional survey of staff at the study sites. - Results - Overall, 58.4% of parents reported an optimal extent of SDM. The optimal extent of SDM was more likely reported by parents of girls (OR=1.27, p < 0.001) and children with physical (as opposed to cognitive and combined) impairments (OR=1.30, p = 0.006), and after appointments attended by allied health professionals (OR=1.28, p = 0.004). In addition, parents in facilities receiving financing in addition to compensation by statutory health insurance funds were less likely to report an optimal extent of perceived SDM. - Conclusion - While SDM with parents was mostly related to individual characteristics of children and professionals at appointments, organizational characteristics seemed less relevant in our study. - Practice implications - Staff should be made aware of lower SDM with parents of boys, older children, and those with cognitive impairments, and trained to improve the SDM in these groups. 
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