Unresolved ethical issues of genetic counseling and testing in clinical psychiatry
Objective - This position article discusses current major ethical and social issues related to genetic counseling and testing in clinical psychiatry (PsyGCT). - Methods - To address these complex issues in the context of clinical psychiatry relevant to PsyGCT, the int...
Gespeichert in:
| Hauptverfasser: | , , , , , , , , , , , , , , , , , , , , , , |
|---|---|
| Dokumenttyp: | Article (Journal) |
| Sprache: | Englisch |
| Veröffentlicht: |
April 2025
|
| In: |
Psychiatric genetics
Year: 2025, Jahrgang: 35, Heft: 2, Pages: 26-36 |
| ISSN: | 1473-5873 |
| DOI: | 10.1097/YPG.0000000000000385 |
| Online-Zugang: | Verlag, lizenzpflichtig, Volltext: https://doi.org/10.1097/YPG.0000000000000385 Verlag, lizenzpflichtig, Volltext: http://journals.lww.com/psychgenetics/abstract/2025/04000/unresolved_ethical_issues_of_genetic_counseling.2.aspx 
|
| Verfasserangaben: | Julia Perry, Eline Bunnik, Marcella Rietschel, Heidi Beate Bentzen, Charlotta Ingvoldstad Malmgren, Joanna Pawlak, Boris Chaumette, Kristiina Tammimies, Filip Bialy, Virginia Bizzarri, Isabella Borg, Domenico Coviello, David Crepaz-Keay, Eliza Ivanova, Andrew McQuillin, Signe Mežinska, Maria Johansson Soller, Jaana Suvisaari, Melanie Watson, Katrine Wirgenes, Sarah L. Wynn, Franziska Degenhardt, Silke Schicktanz |
MARC
| LEADER | 00000caa a22000002c 4500 | ||
|---|---|---|---|
| 001 | 1928904017 | ||
| 003 | DE-627 | ||
| 005 | 20250913141659.0 | ||
| 007 | cr uuu---uuuuu | ||
| 008 | 250623s2025 xx |||||o 00| ||eng c | ||
| 024 | 7 | |a 10.1097/YPG.0000000000000385 |2 doi | |
| 035 | |a (DE-627)1928904017 | ||
| 035 | |a (DE-599)KXP1928904017 | ||
| 040 | |a DE-627 |b ger |c DE-627 |e rda | ||
| 041 | |a eng | ||
| 084 | |a 11 |2 sdnb | ||
| 100 | 1 | |a Perry, Julia |e VerfasserIn |0 (DE-588)1242065717 |0 (DE-627)1771982632 |4 aut | |
| 245 | 1 | 0 | |a Unresolved ethical issues of genetic counseling and testing in clinical psychiatry |c Julia Perry, Eline Bunnik, Marcella Rietschel, Heidi Beate Bentzen, Charlotta Ingvoldstad Malmgren, Joanna Pawlak, Boris Chaumette, Kristiina Tammimies, Filip Bialy, Virginia Bizzarri, Isabella Borg, Domenico Coviello, David Crepaz-Keay, Eliza Ivanova, Andrew McQuillin, Signe Mežinska, Maria Johansson Soller, Jaana Suvisaari, Melanie Watson, Katrine Wirgenes, Sarah L. Wynn, Franziska Degenhardt, Silke Schicktanz |
| 264 | 1 | |c April 2025 | |
| 300 | |a 11 | ||
| 336 | |a Text |b txt |2 rdacontent | ||
| 337 | |a Computermedien |b c |2 rdamedia | ||
| 338 | |a Online-Ressource |b cr |2 rdacarrier | ||
| 500 | |a Gesehen am 23.06.2025 | ||
| 520 | |a Objective - This position article discusses current major ethical and social issues related to genetic counseling and testing in clinical psychiatry (PsyGCT). - Methods - To address these complex issues in the context of clinical psychiatry relevant to PsyGCT, the interdisciplinary and pan-European expert Network EnGagE (Enhancing Psychiatric Genetic Counseling, Testing, and Training in Europe; CA17130) was established in 2018. We conducted an interdisciplinary, international workshop at which we identified gaps across European healthcare services and research in PsyGCT; the workshop output was summarized and systematized for this position article. - Results - Four main unresolved ethical topics were identified as most relevant for the implementation of PsyGCT: (1) the problematic dualism between somatic and psychiatric disorders, (2) the impact of genetic testing on stigma, (3) fulfilling professional responsibilities, and (4) ethical issues in public health services. We provide basic recommendations to inform psychiatrists and other healthcare professionals involved in the clinical implementation of PsyGCT and conclude by pointing to avenues of future ethics research in PsyGCT. - Conclusion - This article draws attention to a set of unresolved ethical issues relevant for mental health professionals, professionals within clinical genetics, patients and their family members, and society as a whole and stresses the need for more interdisciplinary exchange to define standards in psychiatric counseling as well as in public communication. The use of PsyGCT may, in the future, expand and include genetic testing for additional psychiatric diagnoses. We advocate the development of pan-European ethical standards addressing the four identified areas of ethical-practical relevance in PsyGCT. | ||
| 700 | 1 | |a Bunnik, Eline |e VerfasserIn |4 aut | |
| 700 | 1 | |a Rietschel, Marcella |d 1957- |e VerfasserIn |0 (DE-588)112785751 |0 (DE-627)505574020 |0 (DE-576)289742307 |4 aut | |
| 700 | 1 | |a Bentzen, Heidi Beate |e VerfasserIn |4 aut | |
| 700 | 1 | |a Ingvoldstad Malmgren, Charlotta |e VerfasserIn |4 aut | |
| 700 | 1 | |a Pawlak, Joanna |e VerfasserIn |4 aut | |
| 700 | 1 | |a Chaumette, Boris |e VerfasserIn |4 aut | |
| 700 | 1 | |a Tammimies, Kristiina |e VerfasserIn |4 aut | |
| 700 | 1 | |a Bialy, Filip |e VerfasserIn |4 aut | |
| 700 | 1 | |a Bizzarri, Virginia |e VerfasserIn |4 aut | |
| 700 | 1 | |a Borg, Isabella |e VerfasserIn |4 aut | |
| 700 | 1 | |a Coviello, Domenico |e VerfasserIn |4 aut | |
| 700 | 1 | |a Crepaz-Keay, David |e VerfasserIn |4 aut | |
| 700 | 1 | |a Ivanova, Eliza |e VerfasserIn |4 aut | |
| 700 | 1 | |a McQuillin, Andrew |e VerfasserIn |4 aut | |
| 700 | 1 | |a Mežinska, Signe |e VerfasserIn |4 aut | |
| 700 | 1 | |a Johansson Soller, Maria |e VerfasserIn |4 aut | |
| 700 | 1 | |a Suvisaari, Jaana |e VerfasserIn |4 aut | |
| 700 | 1 | |a Watson, Melanie |e VerfasserIn |4 aut | |
| 700 | 1 | |a Wirgenes, Katrine |e VerfasserIn |4 aut | |
| 700 | 1 | |a Wynn, Sarah L. |e VerfasserIn |4 aut | |
| 700 | 1 | |a Degenhardt, Franziska |e VerfasserIn |4 aut | |
| 700 | 1 | |a Schicktanz, Silke |e VerfasserIn |4 aut | |
| 773 | 0 | 8 | |i Enthalten in |t Psychiatric genetics |d Hagerstown, Md. : Lippincott Williams & Wilkins, 1990 |g 35(2025), 2 vom: Apr., Seite 26-36 |h Online-Ressource |w (DE-627)337808260 |w (DE-600)2063156-X |w (DE-576)263808564 |x 1473-5873 |7 nnas |a Unresolved ethical issues of genetic counseling and testing in clinical psychiatry |
| 773 | 1 | 8 | |g volume:35 |g year:2025 |g number:2 |g month:04 |g pages:26-36 |g extent:11 |a Unresolved ethical issues of genetic counseling and testing in clinical psychiatry |
| 856 | 4 | 0 | |u https://doi.org/10.1097/YPG.0000000000000385 |x Verlag |x Resolving-System |z lizenzpflichtig |3 Volltext |
| 856 | 4 | 0 | |u http://journals.lww.com/psychgenetics/abstract/2025/04000/unresolved_ethical_issues_of_genetic_counseling.2.aspx |x Verlag |z lizenzpflichtig |3 Volltext |
| 951 | |a AR | ||
| 992 | |a 20250623 | ||
| 993 | |a Article | ||
| 994 | |a 2025 | ||
| 998 | |g 112785751 |a Rietschel, Marcella |m 112785751:Rietschel, Marcella |d 60000 |e 60000PR112785751 |k 0/60000/ |p 3 | ||
| 999 | |a KXP-PPN1928904017 |e 4737706108 | ||
| BIB | |a Y | ||
| SER | |a journal | ||
| JSO | |a {"language":["eng"],"title":[{"title_sort":"Unresolved ethical issues of genetic counseling and testing in clinical psychiatry","title":"Unresolved ethical issues of genetic counseling and testing in clinical psychiatry"}],"type":{"bibl":"article-journal","media":"Online-Ressource"},"origin":[{"dateIssuedDisp":"April 2025","dateIssuedKey":"2025"}],"recId":"1928904017","note":["Gesehen am 23.06.2025"],"relHost":[{"title":[{"subtitle":"an international journal devoted to studies on inherited factors in disorders of the brain and behaviour","title":"Psychiatric genetics","title_sort":"Psychiatric genetics"}],"part":{"pages":"26-36","extent":"11","issue":"2","volume":"35","text":"35(2025), 2 vom: Apr., Seite 26-36","year":"2025"},"language":["eng"],"pubHistory":["1.1990 -"],"id":{"zdb":["2063156-X"],"issn":["1473-5873"],"eki":["337808260"]},"disp":"Unresolved ethical issues of genetic counseling and testing in clinical psychiatryPsychiatric genetics","physDesc":[{"extent":"Online-Ressource"}],"note":["Gesehen am 11.06.2019"],"recId":"337808260","origin":[{"publisherPlace":"Hagerstown, Md.","publisher":"Lippincott Williams & Wilkins","dateIssuedDisp":"1990-","dateIssuedKey":"1990"}],"type":{"media":"Online-Ressource","bibl":"periodical"}}],"id":{"doi":["10.1097/YPG.0000000000000385"],"eki":["1928904017"]},"physDesc":[{"extent":"11 S."}],"name":{"displayForm":["Julia Perry, Eline Bunnik, Marcella Rietschel, Heidi Beate Bentzen, Charlotta Ingvoldstad Malmgren, Joanna Pawlak, Boris Chaumette, Kristiina Tammimies, Filip Bialy, Virginia Bizzarri, Isabella Borg, Domenico Coviello, David Crepaz-Keay, Eliza Ivanova, Andrew McQuillin, Signe Mežinska, Maria Johansson Soller, Jaana Suvisaari, Melanie Watson, Katrine Wirgenes, Sarah L. Wynn, Franziska Degenhardt, Silke Schicktanz"]},"person":[{"family":"Perry","display":"Perry, Julia","role":"aut","given":"Julia"},{"family":"Bunnik","display":"Bunnik, Eline","given":"Eline","role":"aut"},{"family":"Rietschel","role":"aut","given":"Marcella","display":"Rietschel, Marcella"},{"role":"aut","given":"Heidi Beate","display":"Bentzen, Heidi Beate","family":"Bentzen"},{"given":"Charlotta","role":"aut","display":"Ingvoldstad Malmgren, Charlotta","family":"Ingvoldstad Malmgren"},{"display":"Pawlak, Joanna","role":"aut","given":"Joanna","family":"Pawlak"},{"family":"Chaumette","display":"Chaumette, Boris","role":"aut","given":"Boris"},{"family":"Tammimies","role":"aut","given":"Kristiina","display":"Tammimies, Kristiina"},{"display":"Bialy, Filip","given":"Filip","role":"aut","family":"Bialy"},{"family":"Bizzarri","given":"Virginia","role":"aut","display":"Bizzarri, Virginia"},{"family":"Borg","given":"Isabella","role":"aut","display":"Borg, Isabella"},{"role":"aut","given":"Domenico","display":"Coviello, Domenico","family":"Coviello"},{"family":"Crepaz-Keay","display":"Crepaz-Keay, David","given":"David","role":"aut"},{"family":"Ivanova","display":"Ivanova, Eliza","role":"aut","given":"Eliza"},{"display":"McQuillin, Andrew","role":"aut","given":"Andrew","family":"McQuillin"},{"display":"Mežinska, Signe","role":"aut","given":"Signe","family":"Mežinska"},{"family":"Johansson Soller","given":"Maria","role":"aut","display":"Johansson Soller, Maria"},{"family":"Suvisaari","given":"Jaana","role":"aut","display":"Suvisaari, Jaana"},{"display":"Watson, Melanie","given":"Melanie","role":"aut","family":"Watson"},{"family":"Wirgenes","given":"Katrine","role":"aut","display":"Wirgenes, Katrine"},{"given":"Sarah L.","role":"aut","display":"Wynn, Sarah L.","family":"Wynn"},{"role":"aut","given":"Franziska","display":"Degenhardt, Franziska","family":"Degenhardt"},{"family":"Schicktanz","role":"aut","given":"Silke","display":"Schicktanz, Silke"}]} | ||
| SRT | |a PERRYJULIAUNRESOLVED2025 | ||