Longitudinal description of health-related quality of life and depressive symptoms in polyQ spinocerebellar ataxia patients

Due to limited treatment options, managing symptoms has dominated care for Spinocerebellar Ataxia (SCA). Little attention has been given to health-related quality of life (HRQoL) and depressive symptoms experienced by patients across disease duration.

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Bibliographic Details
Main Authors: Iskandar, Audrey (Author) , Buchholz, Maresa (Author) , Blotenberg, Iris (Author) , Schmitz-Hübsch, Tanja (Author) , Faber, Jennifer (Author) , Jacobi, Heike (Author) , Xie, Feng (Author) , Grobe-Einsler, Marcus (Author) , Klockgether, Thomas (Author) , Michalowsky, Bernhard (Author)
Format: Article (Journal)
Language:English
Published: 09 April 2025
In: Journal of neurology
Year: 2025, Volume: 272, Issue: 5, Pages: 1-13
ISSN:1432-1459
DOI:10.1007/s00415-025-13024-0
Online Access:Verlag, kostenfrei, Volltext: https://doi.org/10.1007/s00415-025-13024-0
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Author Notes:Audrey Iskandar, Maresa Buchholz, Iris Blotenberg, Tanja Schmitz-Hübsch, Jennifer Faber, Heike Jacobi, Feng Xie, Marcus Grobe-Einsler, Thomas Klockgether, Bernhard Michalowsky on behalf of ESMI and EUROSCA Study groups
Description
Summary:Due to limited treatment options, managing symptoms has dominated care for Spinocerebellar Ataxia (SCA). Little attention has been given to health-related quality of life (HRQoL) and depressive symptoms experienced by patients across disease duration.
Item Description:Gesehen am 09.10.2025
Physical Description:Online Resource
ISSN:1432-1459
DOI:10.1007/s00415-025-13024-0