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    The creation of an adaptable informed consent form for research purposes to overcome national and institutional bottlenecks in ethics review: experience from rare disease registrie... by Landi, Annalisa (Author) , Mimouni, Yanis (Author) , Giannuzzi, Viviana (Author) , Schaefer, Franz (Author) , Altavilla, Annagrazia (Author) , Gibson, Spencer (Author) , Julkowska, Daria (Author) ,


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  2. 2

    Comments on and illustrations of the WFUMB CEUS liver guidelines: Rare malignant mesenchymal liver lesions by Zadeh, Ehsan Safai (Author) , Schreiber, Nicole (Author) , Görg, Christian (Author) , Huber, Katharina Paulina (Author) , Möller, Kathleen (Author) , Berzigotti, Analisa (Author) , Thomsen, Thomas (Author) , Jenssen, Christian (Author) , Jung, Ernst-Michael (Author) , Lim, Adrian (Author) , Kitano, Masayuki (Author) , Shimizu, Ryo (Author) , Dong, Yi (Author) , Cui, Xin Wu (Author) , Srivastava, David (Author) , Dietrich, Christoph F. (Author) ,


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    Impact of off-label use regulations on patient care in dermatology: a prospective study of cost-coverage applications filed by tertiary dermatology clinics throughout Germany by Werner, Ricardo Niklas (Author) , Pennitz, A. (Author) , Eisert, L. (Author) , Schmidle, P. (Author) , Zink, A. (Author) , Abraham, S. (Author) , Schäkel, Knut (Author) , Wolff, I. (Author) , Goebeler, M. (Author) , Plange, J. (Author) , Sollfrank, L. (Author) , Zielbauer, S. (Author) , Koll, P. (Author) , Amschler, K. (Author) , Müller, Vanessa (Author) , Nast, Alexander (Author) ,


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    Common elements in rare kidney diseases: conclusions from a kidney disease : improving global outcomes (KDIGO) controversies conference by Aymé, Ségolène (Author) , Schaefer, Franz (Author) ,


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  6. 6

    Vision and challenges of a cartographic representation of expert medical centres for rare diseases by Storf, Holger (Author) , Ückert, Frank (Author) ,


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