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    The creation of an adaptable informed consent form for research purposes to overcome national and institutional bottlenecks in ethics review: experience from rare disease registrie... by Landi, Annalisa (Author) , Mimouni, Yanis (Author) , Giannuzzi, Viviana (Author) , Schaefer, Franz (Author) , Altavilla, Annagrazia (Author) , Gibson, Spencer (Author) , Julkowska, Daria (Author) ,


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