A longitudinal communication approach in advanced lung cancer: a qualitative study of patients’, relatives’ and staff's perspectives
Communication and the care of patients with advanced cancer are a dynamic, interactive and challenging process, often characterised in every day practice by discontinuity and lack of coordination. The objective of this study was to explore the patients’ and family-caregivers’ needs and preferences r...
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| Hauptverfasser: | , , , , , , , , , , |
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| Dokumenttyp: | Article (Journal) |
| Sprache: | Englisch |
| Veröffentlicht: |
2018
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| In: |
European journal of cancer care
Year: 2017, Jahrgang: 27, Heft: 2, Pages: 1-8 |
| ISSN: | 1365-2354 |
| DOI: | 10.1111/ecc.12794 |
| Online-Zugang: | Verlag, Volltext: http://dx.doi.org/10.1111/ecc.12794 Verlag, Volltext: https://onlinelibrary.wiley.com/doi/abs/10.1111/ecc.12794 
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| Verfasserangaben: | M. Villalobos MD (senior physician), K. Coulibaly MD (doctoral student), K. Krug Dr. Dipl-Psych (research assistant), M. Kamradt MSc (research assistant), M. Wensing PhD, MSc (deputy director), A. Siegle MA (research assistant), J. Kuon MD (oncologist), C. Eschbach MD (palliative care specialist), G. Tessmer Dipl.-Psych. (psychologist), E. Winkler MD, Phd (extraordinary professor), J. Szecsenyi MD (university professor, director), D. Ose MPH (visiting instructor), M. Thomas MD (university professor, director) |
| Zusammenfassung: | Communication and the care of patients with advanced cancer are a dynamic, interactive and challenging process, often characterised in every day practice by discontinuity and lack of coordination. The objective of this study was to explore the patients’ and family-caregivers’ needs and preferences regarding communication, quality of life and care over the trajectory of disease. The second aim was to assess health professionals’ views on a longitudinally structured, forward-thinking communication approach based on defined milestones. A qualitative approach was chosen incorporating semi-structured interviews with nine patients with metastatic lung cancer and nine relatives, and focus groups with 15 healthcare providers from different professions involved in the care of these patients. Patients and relatives described a situation of shock and coping deficits with moments of insufficient communication and lack of continuity in care. Healthcare providers reported the strong need for improvement in communication within the team and between patients and professionals and welcomed the implementation of a longitudinal communication approach. Requirements for the implementation of a longitudinal communication approach include specific communication training with focus on the process that patients and relatives are involved in. Team-building measures and the necessary flexibility to respect individuality in life should be incorporated. |
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| Beschreibung: | First published: 23 November 2017 Gesehen am 13.09.2018 |
| Beschreibung: | Online Resource |
| ISSN: | 1365-2354 |
| DOI: | 10.1111/ecc.12794 |