Do patients and research subjects have a right to receive their genomic raw data?: an ethical and legal analysis
As Next Generation Sequencing technologies are increasingly implemented in biomedical research and (translational) care, the number of study participants and patients who ask for release of their genomic raw data is set to increase. This raises the question whether research participants and patients...
Saved in:
| Main Authors: | , , |
|---|---|
| Format: | Article (Journal) |
| Language: | English |
| Published: |
16 January 2020
|
| In: |
BMC medical ethics
Year: 2020, Volume: 21 |
| ISSN: | 1472-6939 |
| DOI: | 10.1186/s12910-020-0446-y |
| Online Access: | Verlag, lizenzpflichtig, Volltext: https://doi.org/10.1186/s12910-020-0446-y
|
| Author Notes: | Christoph Schickhardt, Henrike Fleischer and Eva C. Winkler |
| Summary: | As Next Generation Sequencing technologies are increasingly implemented in biomedical research and (translational) care, the number of study participants and patients who ask for release of their genomic raw data is set to increase. This raises the question whether research participants and patients have a legal and moral right to receive their genomic raw data and, if so, how this right should be implemented into practice. |
|---|---|
| Item Description: | Gesehen am 27.04.2020 |
| Physical Description: | Online Resource |
| ISSN: | 1472-6939 |
| DOI: | 10.1186/s12910-020-0446-y |