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Sickle cell disease in Germany: results from a national registry

Background - Limited data on the prevalence and medical care of sickle cell disease (SCD) in Germany are available. Here, we make use of a patient registry to characterize the burden of disease and the treatment modalities for patients with SCD in Germany.

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Bibliographic Details
Main Authors: Kunz, Joachim (Author) , Tagliaferri, Laura (Author) , Beck, Dorothea (Author) , Kulozik, Andreas (Author)
Format: Article (Journal)
Language:English
Published: 2020
In: Pediatric blood & cancer
Year: 2020, Volume: 67, Issue: 4
ISSN:1545-5017
DOI:10.1002/pbc.28130
Online Access:Verlag, lizenzpflichtig, Volltext: https://doi.org/10.1002/pbc.28130
Verlag, lizenzpflichtig, Volltext: https://onlinelibrary.wiley.com/doi/10.1002/pbc.28130
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Author Notes:Joachim B. Kunz, Stephan Lobitz, Regine Grosse, Lena Oevermann, Dani Hakimeh, Andrea Jarisch, Holger Cario, Rita Beier, Daniela Schenk, Dominik Schneider, Ute Groß‐Wieltsch, Aram Prokop, Sabine Heine, Claudia Khurana, Miriam Erlacher, Matthias Dürken, Christina Linke, Michael Frühwald, Selim Corbacioglu, Alexander Claviez, Markus Metzler, Martin Ebinger, Hermann Full, Thomas Wiesel, Wolfgang Eberl, Harald Reinhard, Laura Tagliaferri, Pierre Allard, Irini Karapanagiotou‐Schenkel, Lisa-Marie Rother, Dorothea Beck, Lucian Le Cornet, Andreas E. Kulozik, German Sickle Cell Disease Registry
Description
Summary:Background - Limited data on the prevalence and medical care of sickle cell disease (SCD) in Germany are available. Here, we make use of a patient registry to characterize the burden of disease and the treatment modalities for patients with SCD in Germany.
Item Description:First published: 22 December 2019
Gesehen am 19.01.2021
Physical Description:Online Resource
ISSN:1545-5017
DOI:10.1002/pbc.28130

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