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Direct and indirect costs and cost-driving factors of Tuberous sclerosis complex in children, adolescents, and caregivers: a multicenter cohort study

Tuberous sclerosis complex (TSC), a multisystem genetic disorder, affects many organs and systems, characterized by benign growths. This German multicenter study estimated the disease-specific costs and cost-driving factors associated with various organ manifestations in TSC patients.

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Bibliographic Details
Main Authors: Grau, Janina (Author) , Syrbe, Steffen (Author)
Format: Article (Journal)
Language:English
Published: 21 June 2021
In: Orphanet journal of rare diseases
Year: 2021, Volume: 16, Pages: 1-16
ISSN:1750-1172
DOI:10.1186/s13023-021-01899-x
Online Access:Verlag, lizenzpflichtig, Volltext: https://doi.org/10.1186/s13023-021-01899-x
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Author Notes:Janina Grau, Johann Philipp Zöllner, Susanne Schubert-Bast, Gerhard Kurlemann, Christoph Hertzberg, Adelheid Wiemer-Kruel, Thomas Bast, Astrid Bertsche, Ulrich Bettendorf, Barbara Fiedler, Andreas Hahn, Hans Hartmann, Frauke Hornemann, Ilka Immisch, Julia Jacobs, Matthias Kieslich, Karl Martin Klein, Kerstin A. Klotz, Gerhard Kluger, Markus Knuf, Thomas Mayer, Klaus Marquard, Sascha Meyer, Hiltrud Muhle, Karen Müller-Schlüter, Anna H. Noda, Susanne Ruf, Matthias Sauter, Jan-Ulrich Schlump, Steffen Syrbe, Charlotte Thiels, Regina Trollmann, Bernd Wilken, Laurent M. Willems, Felix Rosenow and Adam Strzelczyk
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Summary:Tuberous sclerosis complex (TSC), a multisystem genetic disorder, affects many organs and systems, characterized by benign growths. This German multicenter study estimated the disease-specific costs and cost-driving factors associated with various organ manifestations in TSC patients.
Item Description:Gesehen am 19.08.2021
Physical Description:Online Resource
ISSN:1750-1172
DOI:10.1186/s13023-021-01899-x

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