Accuracy and reliability of internet resources for information on monoclonal gammopathy of undetermined significance: what information is out there for our patients?
Background: Online information gathering can increase patients’ engagement in decision-making. The quality of online resources available for monoclonal gammopathy of undetermined significance (MGUS) was evaluated. Methods: 900 websites from Google, Bing, Yahoo, and 150 YouTube videos were assessed....
Saved in:
| Main Authors: | , , , , , |
|---|---|
| Format: | Article (Journal) |
| Language: | English |
| Published: |
7 September 2021
|
| In: |
Cancers
Year: 2021, Volume: 13, Issue: 18, Pages: 1-18 |
| ISSN: | 2072-6694 |
| DOI: | 10.3390/cancers13184508 |
| Online Access: | Verlag, lizenzpflichtig, Volltext: https://doi.org/10.3390/cancers13184508 Verlag, lizenzpflichtig, Volltext: https://www.mdpi.com/2072-6694/13/18/4508 
|
| Author Notes: | Emma Pauline Kreutzer, Sandra Sauer, Mark Kriegsmann, Henrike Staemmler, Gerlinde Egerer, Katharina Kriegsmann |
| Summary: | Background: Online information gathering can increase patients’ engagement in decision-making. The quality of online resources available for monoclonal gammopathy of undetermined significance (MGUS) was evaluated. Methods: 900 websites from Google, Bing, Yahoo, and 150 YouTube videos were assessed. Results: The websites did not differ regarding their search rank or between the search engines. The median time since last update was 24 months. The 86 unique websites showed a medium to poor general quality (JAMA score 3/4, only 8.1% websites with a valid HON certificate). The patient- (user-) focused quality was poor (sum DISCERN score 27/80 points). The reading level was difficult (11th US school grade). The content level was very low (13/50 points). 12.8% of websites contained misleading/wrong facts. Websites provided by scientific/governmental organizations had a higher content level. For the 61 unique videos, the median time since upload was 34 months. The videos showed a medium general quality (HON Foundation score). The patient- (user-) focused quality was poor (sum DISCERN score 24 points). The content level was very low (6 points). Conclusion: MGUS-relevant online sources showed a low quality that was provided on a high reading level. Incorporation of quality indices and regular review of online content is warranted. |
|---|---|
| Item Description: | Gesehen am 10.11.2021 |
| Physical Description: | Online Resource |
| ISSN: | 2072-6694 |
| DOI: | 10.3390/cancers13184508 |