Implementing a tracking system for confirmatory diagnostic results after positive newborn screening for cystic fibrosis: implications for process quality and patient care

Newborn screening for cystic fibrosis (CF-NBS) was introduced in Germany in 2016. Currently, systematic follow-up of positive CF-NBS results is not implemented or reimbursed in the NBS program. We investigated results of confirmatory testing over …

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Bibliographic Details
Main Authors: Gramer, Gwendolyn (Author) , Brockow, Inken (Author) , Labitzke, Christiane (Author) , Fang-Hoffmann, Junmin (Author) , Beivers, Andreas (Author) , Feyh, Patrik (Author) , Hoffmann, Georg F. (Author) , Nennstiel-Ratzel, Uta (Author) , Sommerburg, Olaf (Author)
Format: Article (Journal)
Language:German
Published: 2021
In: European journal of pediatrics
Year: 2021, Volume: 180, Issue: 4, Pages: 1145-1155
ISSN:1432-1076
DOI:10.1007/s00431-020-03849-4
Online Access:Verlag, kostenfrei, Volltext: https://doi.org/10.1007/s00431-020-03849-4
Verlag, kostenfrei, Volltext: https://www.springermedizin.de/implementing-a-tracking-system-for-confirmatory-diagnostic-resul/18521594
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Author Notes:Gwendolyn Gramer, Inken Brockow, Christiane Labitzke, Junmin Fang-Hoffmann, Andreas Beivers, Patrik Feyh, Georg F. Hoffmann, Uta Nennstiel, Olaf Sommerburg
Description
Summary:Newborn screening for cystic fibrosis (CF-NBS) was introduced in Germany in 2016. Currently, systematic follow-up of positive CF-NBS results is not implemented or reimbursed in the NBS program. We investigated results of confirmatory testing over …
Item Description:Published: 26 October 2020
Gesehen am 25.11.2021
Physical Description:Online Resource
ISSN:1432-1076
DOI:10.1007/s00431-020-03849-4