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Patients’ willingness to provide their clinical data for research purposes and acceptance of different consent models: findings from a representative survey of patients with cancer

Background: Secondary use of clinical data for biomedical research purposes holds great potential for various types of noninterventional, data-driven studies. Patients’ willingness to support research with their clinical data is a crucial prerequisite for research progress. - Objective: The aim of t...

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Bibliographic Details
Main Authors: Köngeter, Anja (Author) , Schickhardt, Christoph (Author) , Jungkunz, Martin (Author) , Bergbold, Susanne (Author) , Mehlis, Katja (Author) , Winkler, Eva C. (Author)
Format: Article (Journal)
Language:English
Published: 25.08.22
In: Journal of medical internet research
Year: 2022, Volume: 24, Issue: 8, Pages: 1-14
ISSN:1438-8871
DOI:10.2196/37665
Online Access:Verlag, lizenzpflichtig, Volltext: https://doi.org/10.2196/37665
Verlag, lizenzpflichtig, Volltext: https://www.jmir.org/2022/8/e37665
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Author Notes:Anja Köngeter, MA; Christoph Schickhardt, DPhil; Martin Jungkunz, DPhil; Susanne Bergbold, Dipl; Katja Mehlis, DPhil; Eva C Winkler, DPhil, Prof Dr
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Summary:Background: Secondary use of clinical data for biomedical research purposes holds great potential for various types of noninterventional, data-driven studies. Patients’ willingness to support research with their clinical data is a crucial prerequisite for research progress. - Objective: The aim of the study was to learn about patients’ attitudes and expectations regarding secondary use of their clinical data. In a next step, our results can inform the development of an appropriate governance framework for secondary use of clinical data for research purposes.
Item Description:Gesehen am 22.09.2022
Physical Description:Online Resource
ISSN:1438-8871
DOI:10.2196/37665

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