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Patients’ willingness to provide their clinical data for research purposes and acceptance of different consent models: findings from a representative survey of patients with cancer

Background: Secondary use of clinical data for biomedical research purposes holds great potential for various types of noninterventional, data-driven studies. Patients’ willingness to support research with their clinical data is a crucial prerequisite for research progress. - Objective: The aim of t...

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Bibliographische Detailangaben
Hauptverfasser: Köngeter, Anja (VerfasserIn) , Schickhardt, Christoph (VerfasserIn) , Jungkunz, Martin (VerfasserIn) , Bergbold, Susanne (VerfasserIn) , Mehlis, Katja (VerfasserIn) , Winkler, Eva C. (VerfasserIn)
Dokumenttyp: Article (Journal)
Sprache:Englisch
Veröffentlicht: 25.08.22
In: Journal of medical internet research
Year: 2022, Jahrgang: 24, Heft: 8, Pages: 1-14
ISSN:1438-8871
DOI:10.2196/37665
Online-Zugang:Verlag, lizenzpflichtig, Volltext: https://doi.org/10.2196/37665
Verlag, lizenzpflichtig, Volltext: https://www.jmir.org/2022/8/e37665
Volltext
Verfasserangaben:Anja Köngeter, MA; Christoph Schickhardt, DPhil; Martin Jungkunz, DPhil; Susanne Bergbold, Dipl; Katja Mehlis, DPhil; Eva C Winkler, DPhil, Prof Dr
Beschreibung
Zusammenfassung:Background: Secondary use of clinical data for biomedical research purposes holds great potential for various types of noninterventional, data-driven studies. Patients’ willingness to support research with their clinical data is a crucial prerequisite for research progress. - Objective: The aim of the study was to learn about patients’ attitudes and expectations regarding secondary use of their clinical data. In a next step, our results can inform the development of an appropriate governance framework for secondary use of clinical data for research purposes.
Beschreibung:Gesehen am 22.09.2022
Beschreibung:Online Resource
ISSN:1438-8871
DOI:10.2196/37665

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