Patients’ willingness to provide their clinical data for research purposes and acceptance of different consent models: findings from a representative survey of patients with cancer
Background: Secondary use of clinical data for biomedical research purposes holds great potential for various types of noninterventional, data-driven studies. Patients’ willingness to support research with their clinical data is a crucial prerequisite for research progress. - Objective: The aim of t...
Gespeichert in:
| Hauptverfasser: | , , , , , |
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| Dokumenttyp: | Article (Journal) |
| Sprache: | Englisch |
| Veröffentlicht: |
25.08.22
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| In: |
Journal of medical internet research
Year: 2022, Jahrgang: 24, Heft: 8, Pages: 1-14 |
| ISSN: | 1438-8871 |
| DOI: | 10.2196/37665 |
| Online-Zugang: | Verlag, lizenzpflichtig, Volltext: https://doi.org/10.2196/37665 Verlag, lizenzpflichtig, Volltext: https://www.jmir.org/2022/8/e37665 
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| Verfasserangaben: | Anja Köngeter, MA; Christoph Schickhardt, DPhil; Martin Jungkunz, DPhil; Susanne Bergbold, Dipl; Katja Mehlis, DPhil; Eva C Winkler, DPhil, Prof Dr |
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| 520 | |a Background: Secondary use of clinical data for biomedical research purposes holds great potential for various types of noninterventional, data-driven studies. Patients’ willingness to support research with their clinical data is a crucial prerequisite for research progress. - Objective: The aim of the study was to learn about patients’ attitudes and expectations regarding secondary use of their clinical data. In a next step, our results can inform the development of an appropriate governance framework for secondary use of clinical data for research purposes. | ||
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