Transition for adolescents with a rare disease: results of a nationwide German project

The transition process from paediatric/adolescent to adult medical care settings is of utmost importance for the future health of adolescents with chronic diseases and poses even more difficulties in the context of rare diseases (RDs). Paediatric care teams are challenged to deliver adolescent-appro...

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Main Authors:	Oberste-Berghaus, Corinna (Author) , Höppner, Jakob (Author) , Burgard, Peter (Author) , Schündeln, Michael Maria (Author) , Matar, Nora (Author) , Müller, Gabriele (Author) , Krude, Heiko (Author) , Berner, Reinhard (Author) , Lee-Kirsch, Min Ae (Author) , Hauck, Fabian (Author) , Wainwright, Kerstin (Author) , Baumgarten, Sylvana (Author) , Atinga, Janet (Author) , Bauer, Jens J. (Author) , Manka, Eva (Author) , Körholz, Julia (Author) , Kiewert, Cordula (Author) , Heinen, André (Author) , Kretschmer, Tanita (Author) , Kurth, Tobias (Author) , Mittnacht, Janna (Author) , Schramm, Christoph (Author) , Klein, Christoph (Author) , Graessner, Holm (Author) , Hiort, Olaf (Author) , Muntau, Ania C. (Author) , Grüters, Annette (Author) , Hoffmann, Georg F. (Author) , Choukair, Daniela (Author)
Format:	Article (Journal)
Language:	English
Published:	25 April 2023
In:	Orphanet journal of rare diseases Year: 2023, Volume: 18, Pages: 1-9
ISSN:	1750-1172
DOI:	10.1186/s13023-023-02698-2
Online Access:	Verlag, kostenfrei, Volltext: https://doi.org/10.1186/s13023-023-02698-2
Author Notes:	Corinna Grasemann, Jakob Höppner, Peter Burgard, Michael M. Schündeln, Nora Matar, Gabriele Müller, Heiko Krude, Reinhard Berner, Min Ae Lee-Kirsch, Fabian Hauck, Kerstin Wainwright, Sylvana Baumgarten, Janet Atinga, Jens J. Bauer, Eva Manka, Julia Körholz, Cordula Kiewert, André Heinen, Tanita Kretschmer, Tobias Kurth, Janna Mittnacht, Christoph Schramm, Christoph Klein, Holm Graessner, Olaf Hiort, Ania C. Muntau, Annette Grüters, Georg F. Hoffmann and Daniela Choukair