Cover Image

The management of asymptomatic congenital pulmonary airway malformation: results of a European Delphi survey

Consensus on the optimal management of asymptomatic congenital pulmonary airway malformation (CPAM) is lacking, and comparison between studies remains difficult due to a large variety in outcome measures. We aimed to define a core outcome set (COS) for pediatric patients with an asymptomatic CPAM. A...

Full description

Saved in:
Bibliographic Details
Main Authors: Kersten, Casper M. (Author) , Hermelijn, Sergei M. (Author) , Mullassery, Dhanya (Author) , Muthialu, Nagarajan (Author) , Cobanoglu, Nazan (Author) , Gartner, Silvia (Author) , Bagolan, Pietro (Author) , Mesas Burgos, Carmen (Author) , Sgrò, Alberto (Author) , Heyman, Stijn (Author) , Till, Holger (Author) , Suominen, Janne (Author) , Schurink, Maarten (Author) , Desender, Liesbeth (Author) , Losty, Paul (Author) , Steyaert, Henri (Author) , Terheggen-Lagro, Suzanne (Author) , Metzelder, Martin (Author) , Bonnard, Arnaud (Author) , Sfeir, Rony (Author) , Singh, Michael (Author) , Yardley, Iain (Author) , Rikkers-Mutsaerts, Noor R. V. M. (Author) , van der Ent, Cornelis K. (Author) , Qvist, Niels (Author) , Cox, Des W. (Author) , Peters, Robert (Author) , Bannier, Michiel A. G. E. (Author) , Wessel, Lucas (Author) , Proesmans, Marijke (Author) , Stanton, Michael (Author) , Hannon, Edward (Author) , Zampoli, Marco (Author) , Morini, Francesco (Author) , Tiddens, Harm A. W. M. (Author) , Wijnen, René M. H. (Author) , Schnater, Johannes M. (Author)
Format: Article (Journal)
Language:English
Published: 30 July 2022
In: Children
Year: 2022, Volume: 9, Issue: 8, Pages: 1-14
ISSN:2227-9067
DOI:10.3390/children9081153
Online Access:Verlag, kostenfrei, Volltext: https://doi.org/10.3390/children9081153
Verlag, kostenfrei, Volltext: https://www.mdpi.com/2227-9067/9/8/1153
Get full text
Author Notes:Casper M. Kersten, Sergei M. Hermelijn, Dhanya Mullassery, Nagarajan Muthialu, Nazan Cobanoglu, Silvia Gartner, Pietro Bagolan, Carmen Mesas Burgos, Alberto Sgrò, Stijn Heyman, Holger Till, Janne Suominen, Maarten Schurink, Liesbeth Desender, Paul Losty, Henri Steyaert, Suzanne Terheggen-Lagro, Martin Metzelder, Arnaud Bonnard, Rony Sfeir, Michael Singh, Iain Yardley, Noor R.V.M. Rikkers-Mutsaerts, Cornelis K. van der Ent, Niels Qvist, Des W. Cox, Robert Peters, Michiel A.G.E. Bannier, Lucas Wessel, Marijke Proesmans, Michael Stanton, Edward Hannon, Marco Zampoli, Francesco Morini, Harm A.W.M. Tiddens, René M.H. Wijnen and Johannes M. Schnater
Description
Summary:Consensus on the optimal management of asymptomatic congenital pulmonary airway malformation (CPAM) is lacking, and comparison between studies remains difficult due to a large variety in outcome measures. We aimed to define a core outcome set (COS) for pediatric patients with an asymptomatic CPAM. An online, three-round Delphi survey was conducted in two stakeholder groups of specialized caregivers (surgeons and non-surgeons) in various European centers. Proposed outcome parameters were scored according to level of importance, and the final COS was established through consensus. A total of 55 participants (33 surgeons, 22 non-surgeons) from 28 centers in 13 European countries completed the three rounds and rated 43 outcome parameters. The final COS comprises seven outcome parameters: respiratory insufficiency, surgical complications, mass effect/mediastinal shift (at three time-points) and multifocal disease (at two time-points). The seven outcome parameters included in the final COS reflect the diversity in priorities among this large group of European participants. However, we recommend the incorporation of these outcome parameters in the design of future studies, as they describe measurable and validated outcomes as well as the accepted age at measurement.
Item Description:Gesehen am 23.10.2023
Physical Description:Online Resource
ISSN:2227-9067
DOI:10.3390/children9081153

Similar Items