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Recommended data elements for health registries: a survey from a German funding initiative

The selection of data elements is a decisive task within the development of a health registry. Having the right metadata is crucial for answering the particular research questions. Furthermore, the set of data elements determines the registries’ readiness of interoperability and data reusability to...

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Main Authors: Harkener, Sonja (Author) , Jenetzky, Ekkehart (Author) , Rupp, Rüdiger (Author) , Dell, Jennifer (Author) , Engel, Christoph (Author) , von Bargen, Maximilian Ferry (Author) , Finger, Robert P. (Author) , Glienke, Maximilian (Author) , Heinz, Carsten (Author) , Jersch, Patrick (Author) , Martin, David (Author) , Schmutzler, Rita (Author) , Schönthaler, Martin (Author) , Suwelack, Barbara (Author) , Wegner, Jeannine (Author) , Stausberg, Jürgen (Author)
Format: Article (Journal)
Language:English
Published: 27 May 2024
In: BMC medical informatics and decision making
Year: 2024, Volume: 24, Issue: 1, Pages: 1-9
ISSN:1472-6947
DOI:10.1186/s12911-024-02535-x
Online Access:Verlag, kostenfrei, Volltext: https://doi.org/10.1186/s12911-024-02535-x
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Author Notes:Sonja Harkener, Ekkehart Jenetzky, Rüdiger Rupp, Jennifer Dell, Christoph Engel, Maximilian Ferry von Bargen, Robert Finger, Maximilian Glienke, Carsten Heinz, Patrick Jersch, David Martin, Rita Schmutzler, Martin Schönthaler, Barbara Suwelack, Jeannine Wegner and Jürgen Stausberg
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Summary:The selection of data elements is a decisive task within the development of a health registry. Having the right metadata is crucial for answering the particular research questions. Furthermore, the set of data elements determines the registries’ readiness of interoperability and data reusability to a major extent. Six health registries shared and published their metadata within a German funding initiative. As one step in the direction of a common set of data elements, a selection of those metadata was evaluated with regard to their appropriateness for a broader usage.
Item Description:Gesehen am 30.09.2024
Physical Description:Online Resource
ISSN:1472-6947
DOI:10.1186/s12911-024-02535-x

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