Leveraging data as a patient-scientist: frustrations and opportunities

The transition from data scientist to patient-scientist has given me new perspectives into clinical research and strengthened my commitment to open science. Although limitations on data availability have led to frustration, collaboration bodes well for a future in which patients will have access to...

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Main Author: Sáez Rodríguez, Julio (Author)
Format: Article (Journal)
Language:English
Published: 19 June 2025
In: Nature reviews. Nephrology
Year: 2025, Volume: 21, Issue: 9, Pages: 577
ISSN:1759-507X
DOI:10.1038/s41581-025-00968-9
Online Access:Verlag, lizenzpflichtig, Volltext: https://doi.org/10.1038/s41581-025-00968-9
Verlag, lizenzpflichtig, Volltext: https://www.nature.com/articles/s41581-025-00968-9
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Author Notes:by Julio Saez-Rodriguez
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Summary:The transition from data scientist to patient-scientist has given me new perspectives into clinical research and strengthened my commitment to open science. Although limitations on data availability have led to frustration, collaboration bodes well for a future in which patients will have access to more personalized information.
Item Description:Online veröffentlicht: 19. Juni 2025
Gesehen am 17.10.2025
Physical Description:Online Resource
ISSN:1759-507X
DOI:10.1038/s41581-025-00968-9