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Long-term evolution of patient-reported outcome measures in spinocerebellar ataxias

To study the long-term evolution of patient-reported outcome measures (PROMs) in the most common spinocerebellar ataxias (SCAs), we analyzed 8 years follow-up data of the EUROSCA Natural History Study, a cohort study of 526 patients with SCA1, SCA2, SCA3 and SCA6.

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Bibliographic Details
Main Authors: Jacobi, Heike (Author) , Tezenas du Montcel, Sophie (Author) , Bauer, Peter (Author)
Format: Article (Journal)
Language:English
Published: 29 June 2018
In: Journal of neurology
Year: 2018, Volume: 265, Issue: 9, Pages: 2040-2051
ISSN:1432-1459
DOI:10.1007/s00415-018-8954-0
Online Access:Verlag, Volltext: https://doi.org/10.1007/s00415-018-8954-0
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Author Notes:Heike Jacobi, Sophie Tezenas du Montcel, Peter Bauer, Paola Giunti, Arron Cook, Robyn Labrum, Michael H. Parkinson, Alexandra Durr, Alexis Brice, Perrine Charles, Cecilia Marelli, Caterina Mariotti, Lorenzo Nanetti, Lidia Sarro, Maria Rakowicz, Anna Sulek, Anna Sobanska, Tanja Schmitz-Hübsch, Ludger Schöls, Holger Hengel, Laszlo Baliko, Bela Melegh, Alessandro Filla, Antonella Antenora, Jon Infante, José Berciano, Bart P. van de Warrenburg, Dagmar Timmann, Sandra Szymanski, Sylvia Boesch, Wolfgang Nachbauer, Jun-Suk Kang, Massimo Pandolfo, Jörg B. Schulz, Audrey Tanguy Melac, Alhassane Diallo, Thomas Klockgether
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Summary:To study the long-term evolution of patient-reported outcome measures (PROMs) in the most common spinocerebellar ataxias (SCAs), we analyzed 8 years follow-up data of the EUROSCA Natural History Study, a cohort study of 526 patients with SCA1, SCA2, SCA3 and SCA6.
Item Description:Gesehen am 20.02.2020
Physical Description:Online Resource
ISSN:1432-1459
DOI:10.1007/s00415-018-8954-0

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